IQVIA Features DTRF in Report on Collaboration Among Patient Advocacy Groups and Life Sciences Companies The IQVIA Institute for Human Data Science, a leader in developing Patient Reported Outcome (PRO) tools, published a new report titled, Supporting Patients through Research Collaboration: Interactions between patient organizations and life sciences organizations. The report examines the different types of patient organizations, the dynamics affecting them and the activities they conduct, exploring:
Where collaborations with life sciences companies are occurring Where they have been successful and Where patient organizations have indicated there is room for improvement
The DTRF is discussed on page 44, where the development of the GODDESS© Patient Reported Outcome (PRO) tool, is described in detail. The collaboration among the DTRF, Mrinal Gounder, MD of Memorial Sloan Kettering Cancer Center, and IQVIA shows how the synergy between stakeholders resulted in a milestone for desmoid tumor research.
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IQVIA: Supporting Patients Through Research Collaboration
Published Research Articles Dozens of recently published articles have been posted on the Published Research page of our website! This increasing volume of research is yet another indicator of increased awareness of desmoid tumors within the medical research community. With more interest in desmoid research comes advancements that bring us even closer to new treatments. Topics include nirogacesat, pain, sorafenib, and many case reports. These, and hundreds of other articles, have been organized for patients, researchers, and physicians to peruse on the DTRF website. Readers can use the keyword search bar at the top of the page to quickly and easily find articles related to their area of interest.
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