Education, Advocacy and Awareness
DTRF Together We Will Weekend Sept 22th - 24th
Old City Philadelphia was the perfect place to host the DTRF Together We Will Weekend . The event included a welcome reception for patients, clinicians and industry professionals; a patient networking event and “Meet the Doctors” patient-doctor networking brunch; the DTRF International Research Workshop featuring participants from around the world and across many disciplines; and the DTRF Patient Meeting, our signature patient support event that includes educational lectures by leading clinicians, researchers, and other stakeholders. Content is geared toward topics of interest to our patient, caregiver and medical community.
Patient Education
A key part of our mission is empowering patients in their journey by providing a variety of educational programs and opportunities for involvement. Here are the 2023 highlights in this area: The DTRF Annual Patient Meeting Candace Haddox, MD , Medical oncologist, Dana-Farber Cancer Center - “Desmoid tumors 101 / Getting the most from your consultation and treatment plan.” Bernd Kasper, MD, PhD , Professor, University of Heidelberg, Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany) - “Latest edition of the global management consensus from ‘The Desmoid Tumor Working Group’” Bernd Kasper, MD, PhD , Professor, University of Heidelberg, Mannheim University Medical Center, Mannheim Cancer Center, Sarcoma Unit (Germany) - “DeFi: A phase 3 study of nirogacestat in adults with desmoid tumors.” Alessandro Gronchi, MD , Chair, Sarcoma Service, Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano (Italy) - “Active surveillance as a desmoid tumor treatment.”
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