Webinars for Patients & Caregivers “Dealing with Desmoids: Mental Health Tools for the Desmoid Patient” is a virtual educational program series hosted by the DTRF and facilitated by Ashley Williams, a Licensed Clinical Social Worker (LCSW) and desmoid tumor patient. This series, which is still available on our website, explores the unique experience of a desmoid patient and provides mental health education, tools, and strategies for coping with the emotional challenges of this diagnosis. Sessions this year included “Survivor’s Guilt & Toxic Positivity,” where we discussed the impact of other’s responses on a patient’s mental health and identified strategies in dealing with these responses. We also discussed the impact of survivor guilt and strategies to overcome it. We also hosted a webinar titled, "An Integrative Approach to Health and Well-Being" with desmoid tumor patient, Jessica Clark, RN, BSN. Using Duke University Health System's Wheel of Health, Jessica explored how viewing health through an integrative, holistic lens can improve a person’s overall well-being. Facebook Lives in September included a session on “Fundraising for Answers” by our new Development Director, Debbie Nathan, and a session with patient John MacKinnon featuring “One Desmoid Tumor Patient’s Journey” where John shared how his perspective changed once he realized how rare desmoid tumors are.
Watch Virtual Series
23
Made with FlippingBook Online newsletter maker