Fundraising
The DTRF is here to support your fundraisers both big and small. Fundraising is easy when you're having a good time! Community fundraisers like these make a big impact, not just by the donations they generate, but by spreading awareness to people unaffected by the disease. We are a rare disease, so every person we reach outside of our own desmoid community is significant. For more information about fundraising for DTRF, visit our website. There is no limit to the creative ways you can make an impact on desmoid research. We're always here to help and support you.
Below are some of the fundraisers that took place in 2023:
RFA (Running for Answers) and our Champions Virtual Awards Ceremony Our September 2003 in-person Running for Answers RFA event in Philadelphia unfortunately had to be canceled due to an ill-timed hurricane in the area. However, RFA participants raised funds virtually and the outcome was a big success! We were LIVE on Facebook Thursday, 11/2, to celebrate our community and their fundraising efforts. We first spoke to Katie Doyle Myers about her recent diagnosis and successful fundraiser in Colorado. Then we chatted with Tiffany Black and her team, The Spenguins. They are perennial RFA Champions, and it was so exciting to have most of them on screen with us.
We wrapped up with an encouraging toast from desmoid tumor patient, former Philadelphia Eagles linebacker, and motivational speaker, Kevin Reilly.
The RFA community raised more than $63,000 for desmoid tumor research.
The Spenguins organized a 5K in Virginia to celebrate RFA. Even Mister Softee joined them!
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