2023 DTRF Annual Report

Our Team

DTRF Welcomes New Development Director & Operations Manager This July, DTRF proudly introduces Debbie Nathan as our new Development Director. Debbie's extensive experience in disease-specific, non-profit development with the Parkinson's Foundation and Lupus Foundation reinforces our commitment to aggressively fund desmoid tumor research. We had another new addtion in December! DTRF is excited to onboard Shannon Shoop as our new Operations Manager. Shannon encompasses her areas of strength with a passion for organization. She has worked in various industries from startups to growing nonprofits.

Leadership, Volunteers and Staff

JEANNE WHITING Executive Director and Co-founder; as of Nov., Executive Director Emeritus

LYNNE HERNANDEZ Director of Operations; as of Nov., Executive Director

DEBBIE NATHAN Development Director

KELLY MERCIER, PhD Principal Investigator, The DTRF Patient Registry & Natural History Study

AMANDA LUCAS Associate, The DTRF Patient Registry & Natural History Study

MRINAL GOUNDER, MD Scientific Director

MAGGIE CAMERON Communications Manager

SHANNON SHOOP Operations Manager

MANNESH KUMAR, PhD & ALLISON HARPER Published Research Advisors

AMANDA HOFFMAN Website Advisor

BILL LUNDGREN Graphic Designer

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