What We Do
RESEARCH FUNDING
The DTRF is the only foundation in the country solely dedicated to funding desmoid tumor research and finding treatments for this rare disease. The funding of cutting-edge collaborative research continues to be our priority. We fund research projects at the world’s top sarcoma cancer research centers in both basic science and clinical trials. DTRF-funded research seeks to determine what goes wrong in cells to generate these tumors, what systemic and local treatment options work best, and what existing drugs or potential new drugs or treatment modalities could provide effective treatments. The DTRF facilitates collaboration among researchers from multiple institutions to expedite the development of a cure for each and every desmoid tumor patient. DTRF-funded research has made significant advancements in our understanding of the disease. Discoveries made through desmoid tumor research can also potentially have a significant impact on common cancers such as breast, colon, ovarian, and others.
PATIENT SUPPORT
Patients are not fighting this disease alone. Our website provides information and helps direct patients to other sources for information, support, and resources. Our annual Patient Meeting and informational webinars throughout the year provide a supportive environment for patient interaction and informative presentations by clinicians and researchers. Most of all, we seek to support patients by giving them hope through funding research. Our fundraising events around the country promote awareness and give patients and their families and friends a healing way to make a difference as proactive advocates for the cause.
EDUCATION AND COLLABORATION
The DTRF has established a successful annual Patient Meeting which brings patients, physicians, and researchers together for education, support, and collaboration. In connection with the Patient Meeting, we hold the annual DTRF International Desmoid Tumor Research Workshop. This event brings together a diverse group of scientists from around the world including the brightest minds in desmoid tumor research, human genetics, drug development, and related fields. The Workshop facilitates an enthusiastic and collegial atmosphere as researchers across disciplines and institutions collaborate around the shared goal of improving treatments for desmoid tumor patients, establishing research priorities, and advancing toward answers for each and every patient. In addition, our website is a clearinghouse of information on desmoid tumors and published desmoid tumor research, reaching patients, physicians, and researchers around the globe.
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