Why It Matters
The Desmoid Tumor Research Foundation (DTRF) empowers and unites everyone committed to finding answers for the desmoid tumor community.
We aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education.
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Our goal is to find a cure for each and every patient diagnosed with this rare disease. Every year we gain extraordinary momentum in our progress. Our research and collaboration efforts have led to the 2023 FDA approval of the first-ever medical therapy to treat desmoid tumors, as well as other emerging therapies, new clinical trials, and important discoveries about the disease.
As we find more answers, we also work tirelessly to provide patients and caregivers with the resources, information, and opportunities needed to be informed advocates for their care.
We know that our goal of a cure for each and every desmoid tumor patient is within reach...and we will get there together.
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