Questions To Ask Your Doctor: Metastatic Disease INFORMED AND EMPOWERED OCULAR MELANOMA PATIENTS LIVE LONGER, BETTER LIVES
Metastatic Disease Related Questions: • Where is my disease located? • What additional scans do I need to determine the extent of the disease? • Have you tested for genetic mutations ? Will this direct us toward a particular treatment approach? • Are there other treatments at different centers that I should learn about? • Should I get a second opinion? • If my disease is mainly in my liver, do you recommend liver-directed therapy or systemic therapy ? What is the difference? • Are systemic treatments like immunotherapy and traditional chemotherapy effective in OM? • Can different treatments be combined? If so, would you suggest any? • Are there different outcomes depending on the treatment? • What are the side effects of each treatment? • Do I have to travel for the treatment or can I receive it close to home? • If I have to travel, do you know of any travel assistance programs available? Who would
have this information at the different Medical Centers? • Will I be able to continue my normal daily life? How will it change? • How might this impact my life and the lives of my family members? • If I choose no treatment for my metastatic disease, what is my life expectancy? Follow-Up Treatment: • Do I need a brain scan? Do I need one on a regular basis? • Do I need the rest of my body scanned on a regular basis? What scans and how often? Clinical Trials Questions: • Could you explain how trials work? • What are disqualifying factors? • How do I find out about different clinical trials? • What clinical trials would you recommend? • Do most insurance companies cover trials?
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