ZERO Prostate Cancer Annual Report 2021

Supporting Patients When They Need It Most

Emotional support is critical to recovery, and we are eager to welcome all patients

The needs of prostate cancer patients and their families have become more urgent because of pandemic-related hurdles. The COVID-19 pandemic caused delayed treatments, rescheduled medical appointments, and interruptions to the critical care needed by prostate cancer patients. These disruptions, paired with record-setting inflation and nationwide discord, have left more patients than ever asking, what now? This past year, the ZERO community provided vital support to patients, their loved ones, and all those impacted by the disease. At no cost to participants, ZERO’s programs can help with treatment education, emotional support, financial assistance, disease management, and mental health, just to name a few. • Our prostate cancer community gained access to a powerhouse of a support group network through the ZERO and Us TOO merger. ZERO’s Us TOO support groups provide patients and caregivers opportunities to engage and learn from others with shared experiences.  “  JUST 20 YEARS AGO, bringing prostate cancer patients together to share and support each other was nearly nonexistent. But once our small-but-mighty support group began, we became each other’s sounding board, support system, and newfound friends in the fight against prostate cancer. The camaraderie built through our support group has made a world of difference in the fight against this disease. We’re family. “ Ken Willmarth ZERO Us TOO Support Group Leader

• ZERO360’s free patient support services have provided many patients and families with lifesaving debt relief during the ongoing COVID-19 pandemic. ZERO360 case managers provide personalized assistance to help patients secure financial and emotional support, resolve insurance appeals, and cross-check insurance benefits. More than 3,600 patients have been supported since the program’s inception, with $5.7+ million in debt relief obtained. • Transportation remains one of prostate cancer patients’ most significant barriers to care. Through the support of caring individuals like you, more than 660 patients have been able to access care since the implementation of ZERO Drive. In 2021, this program provided transportation-related assistance to patients in Florida, Iowa, New York, Pennsylvania, Texas, Georgia, North Carolina, and South Carolina.

• ZERO Connect, our private Facebook group, has remained crucial to community building and camaraderie in our increasingly digital world. This caring community has grown to more than 3,000 members and is a supportive place to ask questions, share stories, and uplift one another. • An informed patient is an empowered patient. Providing updated educational materials, webinars, Facebook Live events, fact sheets, and toolkits is critical to arming our community with the resources and education necessary to fight this disease. In 2021, more than 1,400 individuals registered to attend our educational webinars, with 2022’s webinar attendee registration number quickly surpassing last year.

into this safe space. For specialized support, we are proud to offer groups specifically welcoming the LGBTQIA+ community,

Black men, deaf men, Spanish-speaking men, caregivers, and more. Now serving more than 5,000 members, groups are available in-person and virtually, in 39 states, with additional groups to come. • The world pivoted to virtual connection during the pandemic, and ZERO’s MENtor program adapted too, providing both virtual and in-person support options. The ZERO MENtor program matches prostate cancer patients with caring and knowledgeable MENtors who provide support, friendship, and advice during their prostate cancer journeys. More than 250 matches have been made since the program’s inception. • ZERO’s Caregiver Connector program matches prostate cancer caregivers with the ongoing one-on-one support of a Caregiver Mentor. Caregiver Mentors share insights and experiences to help caregivers care for themselves and their loved ones. More than 65 matches have been made since the program’s launch in 2020.

ZERO360 BY THE NUMBERS $5.7+ million in debt relief

“ H aving a loved one face prostate cancer is very scary. We worry about his health, how he will respond to treatments and how we will pay the bills. ZERO360 gave me a place where we could ask questions and talk through medical bill solutions. For that, we will always be grateful. ” Jane Prostate Cancer Caregiver

obtained for patients 3,600+ patients and caregivers served 64,000+ support touchpoints on behalf of patients



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