NSLHD News - 30 May

kids’ hospital has arrived at Hornsby A children’s hospital has arrived at Hornsby complete with toys and built for fun. The cubby house that looks like a hospital now features in the paediatric ward at Hornsby Ku- ring-gai Hospital for sick children and their siblings to play in. Hornsby RSL donated funds to purchase a cubby house and associated toys to give some respite to children who are staying in hospital.

General Manager Simon Hill said the cubby house is situated in the outdoor play area on the ward and gives the kids an opportunity to add some fun to what a challenging and scary time can often be. “The funds, which were provided through the Clubs Grant program, are a testament to our local community’s commitment to enhancing the well- being of sick children,” he said. “Thank you to our amazing staff specialist support officer, Kathryn Williamson, for all her hard work with the grant submission.” Stepping up for the right cause Royal North Shore Hospital’s (RNSH) clinical genetics department is taking things one step at a time to clock 150km to mark the 150 children born with neurofibromatosis every year. The hospital provides a statewide specialised service for people with a rare genetic disorder known as neurofibromatosis (NF). NF refers to a group of rare and complex genetic conditions that cause tumours to form on nerves throughout the body. RNSH’s head of clinical genetics Yemima (Mimi) Berman, along with her colleagues, have decided to take part in the Children’s Tumour Foundation of Australia’s Step Up for NF 150km virtual challenge, to help raise money and awareness of NF tumours. NF can lead to a range of significant health issues such as deafness, blindness, physical differences, bone abnormalities, learning difficulties, itch, chronic pain and even cancer. The condition impacts every part of a person’s quality of life, including a person’s physical health, mental health, social relationships, work and education.

Dr Josh Steadson – Head of Department, HKH Paediatrics

“Neurofibromatosis is a devastating disease, predisposing to tumours that can develop on any nerve, at any time in life,” Mimi said. “Starting with tumours on the nerve of the eye in infants, through to malignant nerve tumours in children and young adults, the impact of this disorder is relentless and incurable.” To support the Step UP for NF challenge, visit https://www.stepupfornf.com.au/

RNSH’s clinical genetics department has stepped forward to raise money for neurofibromatosis

NSLHDNEWS | ISSUE 9| 30 MAY 2025

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