BASIC CARE
BASIC CARE & SAFETY
8
9
Skin Care
Nutrition: Eating, Drinking & Swallowing
The goal of hospice care is to increase comfort and well-being. Food and drink can play an important role in comfort. Your Care Team can help you make decisions based on your needs and wishes and listen to your questions and concerns, as we under- stand the subject of foods and fluids can be an emotional topic for many families.
• Keep skin clean by washing with warm water and mild soap and rinse thoroughly. • Keep skin dry as much as possible. • Keep skin well hydrated by drinking as much water as can be tolerated. • Avoid friction or rubbing. You can use cornstarch to reduce friction. • Use alcohol-free lotions for moisturizing. • Do not massage reddened areas. • Sitting for long periods of time can damage the skin that covers the tailbone. Move patient around to take pressure off skin. • Keep heels off bed with pillows under calves. • Change bed position at least every two hours, every hour if in a chair. • Have the patient shift their weight every fifteen minutes while they are awake if possible. • Your Care Team can recommend special pads and mattress overlays to help protect skin. • Nutrition is important in skin care but sometimes even normal amounts of food may overwhelm a patient. Offer protein rich drinks and snacks during the day if the patient can tolerate them. See the section on nu- trition below. • Even when giving extremely attentive care to the patient, the skin can break down because of the physical changes that occur near the end of life. CALL YOUR CARE TEAM IF: • You have questions or con cerns about bathing or grooming, or if you need more help with bathing the patient. • You see a white coating on the tongue or inside the mouth, which can be in- dicative of a yeast infection. • You notice reddened areas that do not fade, open areas, or blisters on the skin. • Changes occur in the ability to turn or change the patient’s position. • You have any other questions or con- cerns about giving care.
SCAN to VIEW VIDEO Appetite changes are often attributed to illness or medications that treat the illness. Food often tastes different, and discomfort or nausea with eating, as well as difficulty swallowing can occur. Weight loss is common with serious illness as a patient may not necessarily be able to gain weight and feel better just by eating more. In addition, studies show that artificial fluids such as those delivered by intravenous infusions (IV) and feeding tubes do not increase a patient’s quality of life and may actually increase discomfort, fluid overload, and the risk of infection. Understanding these concerns, your Care Team can help you focus on ways to make eating and drinking as pleasant as possible for your loved one.
How You Can Help
• Arrange meals and snacks when energy is higher. • Reduce pain when offering food. Taking medica- tions for pain about an hour before a meal may help. Your nurse will help guide you. • Try smaller, more frequent meals with favorite foods. • Use smaller portions and smaller plates as they are less overwhelming. • Avoid foods with strong odors and coarse textures. • Light foods such as rice and vegetables may be easier to digest than meats, pastas, potatoes and bread. • Choose soft foods if there is difficulty with chew- ing or swallowing. • Ask your Care Team about thickeners that can help with swallowing drinks.
• Avoid foods that are excessively cold or hot. • Consider larger-handled utensils and “sipper” cups. • Check with your Care Team or medical provider to be sure that wine or other alcoholic beverages will not interfere with other medications. • Enrich food and increase caloric intake by adding eggs, cheese, powdered milk, protein powder, or peanut butter to recipes. Consider blended shakes made with ice cream and fruit. • Use liquid dietary supplements (like Ensure, Susta- cal, or instant breakfast mix) between meals. • Nutrition consultations are available, if necessary, especially if the patient has any dietary restrictions, cultural requirements, or a history of diabetes.
CALL YOUR CARE TEAM IF:
• You notice increased difficulty in swal- lowing or incidents of choking. • Patient experiences increased nausea, vo miti ng , o r othe r e ati ng difficultie s .
• Patient is suffering from abdominal cramping or pain. • You notice significant changes occur- ring in patient’s appetite or amount of food eaten.
866.466.9734 • FourSeasonsCare.org
866.466.9734 • FourSeasonsCare.org
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