The forgotten story of social care

How can improved outcomes be delivered for this cohort? Individuals in this cohort are often experiencing many of the similar needs that individuals in older adults with frailty needs experience. Subsequently, delivering optimum outcomes for this group looks, wherever possible, like supporting individuals to remain in their own home, with any involvement from adult services focussed on promoting wellbeing, promoting independence and supporting independence. This begins with an asset-based strategy aiming to make best use of voluntary and community sector services or providing

Other support reason cohorts In addition to the cohorts outlined in this section, 18% of working age and lifelong disabled adults have another support need, as shown in Figure 33.

support around any informal carers involved as part of the individual’s network. This is then followed by making effective use of short-term services that help the individual with some form of recovery, rehabilitation, or reablement to reduce or prevent ongoing needs. This may involve regaining or improving aspects of their personal confidence or independence, their strength, or their health. Finally long-term services can be explored, ideally supported by multi-disciplinary input from occupational therapists and physiotherapists, to ensure that the individual’s physical and mobility needs are best accounted for.

The average weekly package cost for these individuals is £245.07 per person per week. Within this average, 43% are individuals with a social support package costing an average of £21 per week, mostly as a direct payment. 49% of individuals in this group receive homecare at an average package cost of £380 per week.

These individuals account for 7% of all expenditure on support for working age and lifelong disabled adults.

Figure 33: Breakdown of ‘other’ primary support reasons

Social Support

PD Cohort Three: 26–39-year-olds with higher levels of need and whose packages of care are increasing slightly in cost

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How can improved outcomes be delivered for this cohort? Individuals in this cohort are likely to have a lifelong physical disability that will require some form of support for life – whether this is mobility support, or adaptations to their home. Delivering optimum outcomes for this group tend to involve a focus on promoting independence, long-term planning and appropriate use of direct payments.

Sensory Support

Cameron is a 27-year- old with cerebral palsy. He lives in his own house, and draws on a direct payment for support from a PA to

Support with Memory and Cognition

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enable him to continue to use his home safely and to access the community.

Percentage of individuals with support need described

What is known about this cohort:

Volumes

Based on the data analysed for this programme from the participating authorities, this cohort accounts for 1 3% of individuals aged 18–64 with a physical disability, and for 1 9% of total working age physical disability expenditure . Individuals in this cohort are slightly more likely to be female than male, but there is no defined trend in the ethnicity of individuals in this cohort nor in their levels of deprivation.

Demographics

Expenditure The average weekly package cost is £731 . The majority of packages increased in cost in the years 2021 to 2024, with an average weekly change of £46 per year. Support types In terms of support types, 54% of individuals in this cohort are supported through direct payments , and 22% are supported through homecare .

The proportion of working age and lifelong disabled individuals in this cohort ranged from 0.8% in one participating authority to 5.5% in another. Significant variation in cost is evident for individuals in this cohort. The average cost of packages of care for individuals in this cohort ranged from £535 per week in one participating authority to £1,440 in another.

Variation between authorities

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