12: References
xxxii Government Legislation (1990); National Health Service and Community Care Act 1990 https://www.legislation.gov.uk/ ukpga/1990/19/contents xxxiii National Institute for Health and Care Excellence; ‘Mental health and the NHS: what’s changed and what’s to come?’, https://indepth.nice.org.uk/mental-health-and-the-nhs/index.html#:~:text=In%20the%20late%201990s%2C%20 the,by%20a%20largely%20unsympathetic%20press. xxxiv Brend, M (2008); ‘First and Last: Closing Learning Disabilities Hospitals, Choice Support’, https://citizen-network.org/ uploads/attachment/260/first-and-last.pdf xxxv Department of Health (2001); ‘Valuing people: A new strategy for learning disability for the 21st century’, https://assets. publishing.service.gov.uk/media/5a7b854740f0b62826a041b9/5086.pdf xxxvi Government UK (2014); ‘Mental Capacity Act: making decisions’, https://www.gov.uk/government/collections/mental- capacity-act-making-decisions xxxvii Citizens Advice (2019); ‘Check if you’re disabled under the Equality Act’, https://www.citizensadvice.org.uk/work/ discrimination-at-work/dealing-with-discrimination-at-work/checking-if-its-discrimination/check-if-youre-disabled- under-the-equality-act-work/ xxxviii BBC News (2012); ‘Winterbourne View: Abuse footage shocked nation’, https://www.bbc.co.uk/news/uk-england- bristol-20084254 xxxix Government Legislation (2014); Care Act 2014 https://www.legislation.gov.uk/ukpga/2014/23/contents xl https://www.england.nhs.uk/learning-disabilities/care/ xli Social Care Future; https://socialcarefuture.org.uk/about-us/ xlii NHS Digital (2024); ‘Assuring Transformation’, https://digital.nhs.uk/data-and-information/data-collections-and-data- sets/data-collections/assuring-transformation xliii Mencap (2024); ‘Independent Investigation into Performance of the NHS in England: Evidence pack from Mencap’; supplied to this research programme xliv White, A; Sheehan, R; Ding, J; Roberts, C; Magill, N; Keagan-Bull, R; Carter, B; Chauhan, U; Tuffrey-Wijne, I; Strydom, A; (2023); ‘Learning from Lives and Deaths – People with a learning disability and autistic people (LeDeR) report for 2022’, https://www.kcl.ac.uk/ioppn/assets/fans-dept/leder-2022-v2.0.pdf xlv Ibid. xlvi NHS Digital (2024) ; ‘Assuring Transformation’, https://digital.nhs.uk/data-and-information/data-collections-and-data- sets/data-collections/assuring-transformation xlvii Mencap (2024); ‘Independent Investigation into Performance of the NHS in England: Evidence pack from Mencap’; supplied to this research programme xlviii Pring, J (2019) ; ‘UN’s torture committee probes UK on ‘grim and unacceptable truths’’, https://www.disabilitynewsservice.com/uns-torture-committee-probes-uk-on-grim-and-unacceptable-truths/ xlix Department for Work and Pensions (2023); ‘Employment of disabled people 2023’, https://www.gov.uk/government/ statistics/the-employment-of-disabled-people-2023/employment-of-disabled-people-2023#:~:text=In%20 education%20attainment%2C%20disabled%20people,for%20non%2Ddisabled%20people). l Ellis, P; Kirby, A; Osborne, A (2023); ‘Neurodiversity and Education’ li Scope (2023); ‘Disability facts and figures’, https://www.scope.org.uk/media/disability-facts-figures lii Ibid. liii Scope (2023); ‘Disability price tag 2023 : the extra cost of disability’, https://www.scope.org.uk/campaigns/extra-costs/ disability-price-tag-2023 liv National Development Team for Inclusion (2022); ‘Work and learning disability research: final report’, https://www.mencap. org.uk/sites/default/files/2023-09/Learning%20disability%20and%20work%20-%20final%20report%2031.10.22[77]%20 (2)%20(1).pdf lv Department for Work & Pensions (2023); ‘Employment of disabled people 2023’, https://www.gov.uk/government/ statistics/the-employment-of-disabled-people-2023/employment-of-disabled-people-2023#:~:text=In%20 education%20attainment%2C%20disabled%20people,for%20non%2Ddisabled%20people lvi Mencap (2024); ‘Mencap Manifesto’, https://www.mencap.org.uk/sites/default/files/2024-03/Mencap. Manifesto_05.03.2024%20v2.pdf lvii Mencap (2016); ‘Almost 1 in 3 young people with a learning disability spend less than an hour a day outside homes – survey of 18–35-year-olds with a learning disability’, https://www.mencap.org.uk/press-release/almost-1-3-young-people- learning-disability-spend-less-hour-day-outside-homes-survey lviii Office of National Statistics (2020) ; ‘Online bullying in England and Wales : year ending March 2020’, https://www.ons.gov. uk/peoplepopulationandcommunity/crimeandjustice/bulletins/onlinebullyinginenglandandwales/yearendingmarch2020 lix Choice support; ‘Supported Loving highlights the importance of good support in helping people to develop and maintain loving relationships’, https://www.choicesupport.org.uk/about-us/what-we-do/supported-loving lx Short- and Long-Term Support (SALT), Adult Social Care Finance Return (ASC-FR), 2022/23 lxi LGA analysis of Revenue Account budget data published by the Department for Levelling Up, Housing and Communities (DLUHC) and population projection data published by the Office for National Statistics (ONS) https://www.local.gov.uk/ about/campaigns/save-local-services/save-local-services-how-ps1-council-funding-spent lxii Ibid. lxiii CPI: https://www.ons.gov.uk/economy/inflationandpriceindices/timeseries/l55o/mm23; Minimum wage: https://www. gov.uk/national-minimum-wage-rates; Whole Life Disability Pathway (England) and Older Adults Physical and Dementia (England): 2019/20 to 2022/23 from ASC-FR Net Current Expenditure on long and short term care combined, by age band and primary support reason. 2023/24 from average of LAs data submitted as part of participating 16 local authorities
i County Councils Network (2024); ‘Councils call for ‘honest discussion’ on what they should be expected to deliver as new data reveals local authorities spend two-thirds of their budgets on care services’, https://www.countycouncilsnetwork. org.uk/councils-call-for-honest-discussion-on-what-they-should-be-expected-to-deliver-as-new-data-reveals- local-authorities-spend-two-thirds-of-their-budgets-on-care-services/#:~:text=The%2037%20councils%20in%20 England's,to%2076%25%20for%20some%20councils ii CCN & Newton (2021); ‘Future of Adult Social Care’, www.futureasc.com iii CCN & Newton (2022); ‘Preparing for Reform’, https://www.countycouncilsnetwork.org.uk/ download/4278/?tmstv=1724422583 iv CCN & Newton (2023); ‘Finding a Way Home’, https://www.countycouncilsnetwork.org.uk/ download/5102/?tmstv=1724422583 v CCN’s recent report Towards an effective and financially sustainable approach to SEND shows how Education Health and
Care Plans (EHCP) for children with SEND have more than doubled during this time. https://www.countycouncilsnetwork.org.uk/download/5402/?tmstv=1724424137
vi
Social Care Future; https://socialcarefuture.org.uk/about-us/
vii Department for Work and Pensions (2023); ‘Employment of disabled people 2023’, https://www.gov.uk/government/ statistics/the-employment-of-disabled-people-2023/employment-of-disabled-people-2023#:~:text=In%20 education%20attainment%2C%20disabled%20people,for%20non%2Ddisabled%20people). viii National Development Team for Inclusion (2022); ‘Work and learning disability research: final report’, https://www.mencap. org.uk/sites/default/files/2023-09/Learning%20disability%20and%20work%20-%20final%20report%2031.10.22[77]%20 (2)%20(1).pdf ix LGA analysis of Revenue Account budget data published by the Department for Levelling Up, Housing and Communities (DLUHC) and population projection data published by the Office for National Statistics (ONS) x Ibid. xi Office of National Statistics (2023); ‘Disability, England and Wales: Census 2021’, https://www.ons.gov.uk/ peoplepopulationandcommunity/healthandsocialcare/healthandwellbeing/bulletins/disabilityenglandandwales/ census2021#:~:text=does%20it%20matter%3F-,Disability%20in%20England%20and%20Wales,19.5%25%20(10.0%20million) xii NHS England; Short and Long Term Support Return (SALT) 2022-2023 xiii CCN & Newton (2021); ‘Future of Adult Social Care’, www.futureasc.com xiv UK Parliament (2024); Mental health in legislation https://archives.blog.parliament.uk/2024/03/14/mental-health-in- legislation/ xv Historic England (2024); ‘The growth of the Asylum – a parallel world’, https://historicengland.org.uk/research/inclusive- heritage/disability-history/1832-1914/the-growth-of-the-asylum/ xvi The Open University; ‘Timeline of learning disability history’, https://www5.open.ac.uk/health-and-social-care/research/ shld/timeline-learning-disability-history#:~:text=1927%20Mental%20Deficiency%20(Amendment)%20Act,have%20 been%20there%20from%20birth. xvii English Heritage (2021); ‘Blue plaque stories – Eugenics in Britain’, https://www.english-heritage.org.uk/visit/blue- plaques/blue-plaque-stories/eugenics/ xviii Historic England (2018); ‘Home from the war: What happened to disabled First World War veterans’, https://heritagecalling. com/2018/12/14/home-from-the-war-what-happened-to-disabled-first-world-war-veterans/ xix Borsay, A. (2012); ‘Disabled children and special education’, https://www.historyandpolicy.org/docs/dfe-anne-borsay- text.pdf xx Stollznow, K. (2020); ‘On the Offensive Prejudice in Language Past and Present’ xxi Nuffield Trust; ‘1948-1957: Establishing the National Health Service’, https://www.nuffieldtrust.org.uk/chapter/1948-1957- establishing-the-national-health-service xxii Ibid. xxiii Langdon Down Museum of Learning Disability; ‘Social history of learning disability’, https://langdondownmuseum.org.uk/ the-history-of-learning-disability/social-history-of-learning-disability/ xxiv National Institute for Health and Care Excellence; ‘Mental health and the NHS: What’s changed and what’s to come?’ https://indepth.nice.org.uk/mental-health-and-the-nhs/index.html xxv European Disability Forum (2017); ‘Ending forced sterilisation of women and girls with disabilities’ https://www.edf-feph. org/content/uploads/2020/12/edf_forced-sterilisation_8-accessible_6.pdf xxvi The Health Foundation; ‘National scandals regarding care in ‘mental handicap’ hospitals’, https://navigator.health.org.uk/ theme/national-scandals-regarding-care-mental-handicap-hospitals xxvii Royal College of Nursing (2021); ‘100 years of learning disability nurses’, https://www.rcn.org.uk/library-exhibitions/ Learning-disability-2020 xxviii Gates, B (2022); ‘Care or control: the complex history of learning disability nursing’, https://www.rcn.org.uk/magazines/ History/2022/Jun/History-of-learning-disability-nursing xxix The King’s Fund (1982); ‘An ordinary life: comprehensive locally-based residential services for mentally handicapped people’, https://archive.kingsfund.org.uk/concern/published_works/000001408?locale=pt-BR xxx Government Legislation (1981); Education Act 1981, https://www.legislation.gov.uk/ukpga/1981/60/enacted xxxi Mind (2022); ‘The Mental Health Act 1983’ https://www.mind.org.uk/information-support/legal-rights/mental-health- act-1983/about-the-mha-1983/
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