The Alliance will also support enduring linkage of cancer-related data for all
jurisdictions to the National Health Data Hub. This will drive more efficient access and strategic use of MBC data, enhanced and standardised reporting, and evidence-based cancer care and research priorities. Build capacity across all cancer registries. Every state and territory must have the capability to analyse their own linked cancer and treatment data to support local jurisdictional service needs, planning, and to contribute to an accurate national picture of MBC. Better data collection will also inform predictive models that identify emerging service gaps in priority groups, including MBC and cancer sub-types, forming a stronger evidence base for health and cancer policy, research, and funding. Ongoing investment in specialist cancer registry workforce, systems, infrastructure, and technology will ensure state and territory cancer registries can collaborate with the AIWH to develop harmonised methods of data collection. Leveraging health technology and AI to strengthen data completeness and accuracy will ensure sustainable, repeatable and replicable data reporting. Accelerate investment in integrated health data initiatives that address the specific needs of metastatic cancers. Healthcare models for MBC should prioritise living well and quality of life, yet most existing cancer initiatives and tools focus on early-stage breast cancer. Implementing and evaluating national cancer initiatives, such as the Australian Cancer Plan and National Cancer Data Framework , must address the specific needs of people with metastatic cancers, including MBC. Integrating and linking metastatic cancer data is critical to delivering person-centred care, improving detection, risk-stratified interventions, pathology and screening reporting, and care coordination. By streamlining and harmonising data methods and sharing insights about new technologies, governments can fast-track innovation and build stronger partnerships with researchers, healthcare professionals, and consumers to deliver projects that enhance healthcare experiences and quality of life.
This national estimate marks an important milestone in Australia’s cancer data reform and visibility for people living with metastatic breast cancer. Delivered by the Australian Institute of Health and Welfare, with the support of Cancer Australia and the Department of Health, Disability and Ageing, this achievement has been driven by the leadership and advocacy of Breast Cancer Network Australia. For the first time, Australia has a clearer picture of how many people are living with metastatic breast cancer — data that will bring greater visibility to this population across planning, policy and service delivery nationwide. – The Hon Mark Butler MP - Minister for Health, Disability and Ageing
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