ACKNOWLEDGEMENTS We acknowledge the tireless work of those who have sought to put this issue on the national agenda and solve this complex challenge. Their vision, persistence, and technical leadership laid the foundations upon which this progress has been built. It is a testament to what is possible when people come together with shared purpose. BCNA Metastatic Breast Cancer Lived Experience Reference Group –
past and present members The Australian Government
Australian Institute of Health and Welfare BCNA National Roundtable attendees (2023) Department of Health, Disability and Ageing Cancer Australia Members of the Australian Cancer Data Alliance Cancer registries from across Australia Researchers, epidemiologists and cancer-control policy experts whose work underpins this national breakthrough BCNA Board, staff, Consumer Representatives, and the Project 27 Working Group BCNA Consumer Representatives from the Seat at the Table Program We also honour the memory of those who have died from metastatic breast cancer. Your strength and advocacy continue to inspire our work. FOOTNOTES 1. Projections between 2022 to 2031 from productivity-adjusted life years lived and associated gross domestic product (GDP) costs in Australian females aged 20–64 years. Also quantified as $1.4 billion in lost wage earnings. 2. Rates are lower for certain MBC sub-types and population groups. MBC survival can range from 6 months to 15 years. 3. The Lancet. Cancer registries: the bedrock of global cancer care. Lancet . 2025 Feb 1;405(10476):353. 4. For example, WHO Global Breast Cancer Initiative; WHO Global Initiative for Cancer Registry Development; International Agency for Research on Cancer (IARC); International consensus guidelines for the management of advanced breast cancer (ABC guidelines 6 and 7, Cardoso, Fatima et al., The Breast , Volume 76, 103756), Lancet Breast Cancer Commission, Advanced Breast Cancer (ABC) Global Alliance 5. Coles CE, Earl H, Anderson BO, Barrios CH, Bienz M, Bliss JM, Cameron DA, Cardoso F, et al. Breast cancer: addressing inequities and improving outcomes worldwide . Lancet. 2024;403(10439):1895–1950. doi:10.1016/S0140- 6736(24)00747-500747-5) #Source: AIHW analysis of CaT-Link data, and adjustment with reference to Cancer Institute NSW (CINSW), Cancer Council Victoria (CCV) and Cancer Alliance Queensland (CAQ). For further details, refer to: Australian Institute of Health and Welfare (2025) Metastatic breast cancer - first national estimates, AIHW, Australian Government. Notes: 1. Estimates have been rounded to the nearest 10 (for small numbers) or 100 (for large numbers). 2. Rows will not add to total due to rounding because for 50 out of the 20,800 cases, there was insufficient information to identify state of residence. 3. In addition to these prevalent women, approximately 150 Australian men diagnosed with MBC are also estimated to be prevalent at the end of 2024. 4. AIHW estimates for NSW, Victoria and Queensland will differ from the counts previously produced by CINSW, CCV and CAQ, reflecting differences in the available data and completeness of counts, the assumptions used to model national estimates, or interstate differences in treatment (if any).
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