From Invisibility to Influence: Progress on MBC data reforms in Australia
FOREWORD
BCNA’s advocacy has ensured people living with metastatic breast cancer (MBC) are now recognised and counted in national data – a milestone achieved through sector-wide collaboration. The successful reporting of national metastatic breast cancer data marks a significant step forward in Australia’s commitment to improving cancer outcomes. It demonstrates how far we have come in recognising and responding to the needs of people living with metastatic disease. This Report, which aligns with the Australian Cancer Plan and the recently launched National Data Cancer Framework , highlights the progress achieved since the launch of BCNA’s 2023 Roadmap. It underscores the importance of high-quality, integrated data and equitable cancer outcomes for all Australians. Data will continue to be vital to achieving equity in cancer outcomes. Comprehensive cancer data enables more inclusive, person-centred care and supports evidence-based policy and planning. Finally, I would like to acknowledge that this progress has been made possible through strong partnerships across the sector. I would also like to pay tribute to the late Peta Murphy MP, and all advocates, whose advocacy and vision helped advance metastatic cancer data collection. By building on these foundations, we can ensure that every person living with metastatic breast cancer is visible, supported and represented in shaping the future of Australian cancer care. Professor Dorothy Keefe CEO, Cancer Australia
WHILE THESE ACHIEVEMENTS IN CANCER DATA ARE WORTH CELEBRATING, IT IS ESSENTIAL TO SUSTAIN MOMENTUM. WE NEED CONTINUED COLLABORATION AND NATIONAL COORDINATION TO BUILD REGISTRY CAPACITY AND ENSURE EMERGING DATA MODELS TRANSLATE INTO EQUITABLE, PERSON-CENTRED CARE.
02
Made with FlippingBook - professional solution for displaying marketing and sales documents online