Questions To Ask Your Doctor: Primary Disease INFORMED AND EMPOWERED OCULAR MELANOMA PATIENTS LIVE LONGER, BETTER LIVES
Treatment Questions: • What are my treatment options and what are the differences? Are there different options or treatment centers that I should know about? • Which treatment do you think is best for me and why? • What type of radiation treatments do you offer? • Do I need to have my eye removed? • How many OM patients have you treated? • Are there different outcomes depending on the different treatments? • What are the side effects of each treatment? How soon will those side effects emerge? • Will my vision in the treated eye be affected? Is there medicine or a shot that could help? • If vision loss is expected, when will it occur? • Is losing one’s sight painful? Will there be flashes of light or blind-spots? Will I be disabled? Can I drive? • How will this affect my normal daily life? • Should I get a second opinion?
There are a few specialists you may encounter, and you should know the difference between those specialists when choosing which will be best suited for your treatment plan. Primary Eye Tumor Related Questions: • What is ocular melanoma and how does it differ from cutaneous (skin) melanoma? • What are the dimensions of the tumor? Diameter? Height? Thickness? What do they mean for treatment options? • Can I receive a written report with this information? • Is ocular melanoma staged like other cancers? If so, what stage am I? • Will you do a biopsy of the tumor? Why/Why not? What can be learned from the biopsy? Are there risks of doing a biopsy and what are they? • If there is a biopsy, will you test my tumor for genetic mutations ? How do mutations affect treatment options and metastatic disease? • Should I look into genetic counseling? • How will you determine if the cancer has spread? What is metastatic disease ?
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