Bring someone with you to appointments (once in outpatient stage) Having an extra set of ears is invaluable. They might catch details you miss, or think of additional questions. This is especially useful for big consultations (e.g., with a spinal surgeon or rehab doctor). A companion can also help remember instructions or take notes. Be honest and accurate when reporting info. Whether it’s describing the patient’s pain, mood, or any issue, try to be specific. Instead of “He’s in pain,” say “He rates his pain around 8/10 in his legs especially in the evenings.” This helps the team address it properly. Learn the routine and whom to ask for what. In hospital or rehab, certain questions are best for certain professionals (medication issues – ask the nurse or doctor; therapy schedule – ask the therapist; equipment problem – maybe the rehab engineer or OT). Understanding roles saves time. If you’re not sure, ask any staff and they’ll direct you. Confirm your understanding. At the end of a discussion, you can summarise: “So the plan is, we’ll try the new bladder medication and follow up in two weeks, correct?” This ensures everyone is on the same page. Keep communication respectful and constructive. Emotions can run high, but approach issues calmly. If you disagree with something, voice it as a concern (“I’m worried this plan might not be working because…”) rather than confrontation. Most providers truly want what’s best, and collaborative communication yields better outcomes.
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PRACTICAL TIPS FOR FAMILIES AND CAREGIVERS
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