Ocular Melanoma Patient and Caregiver Guide

Clinical Trials There is some important information you should know about clinical trials in uveal melanoma: l  Trials help physicians determine which patients should receive new treatment approaches — including different drugs, targeted therapies, immunotherapies or treatment combinations — and in what sequence. l Trials may provide you access to therapies not yet approved by the FDA but that may be more effective. l  Trials are usually (but not always) free to participate in and you may have more diagnostic tests while participating than you otherwise would have during regular treatment. Be sure you understand your health insurance policy and the coverage of the clinical trial so you are fully aware of what is covered and what is not. l  Joining a clinical trial is voluntary, and you can leave a trial at any time.

Visit melanoma.org to find an ocular melanoma treatment center and a specialist who can discuss all possible treatment options with you, including clinical trials. How can I join a clinical trial? If you’re interested in joining a clinical trial, talk with your doctor. You can also…

Learn about clinical trials in melanoma.

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Tips to remember l N ever hesitate to mention your side effects to your treatment team. Keeping your treatment team informed of all side effects as soon as they occur is of the utmost importance. l   Experiencing few or no side effects does not mean the treatment isn’t working. l It’s impossible to know how you will react to any given treatment. l  T here is no one-size-fits-

Managing Side Effects Unfortunately, side effects are a reality of every treatment option. Side effects vary by treatment and by individual. Some patients experience every possible side effect while others experience very few, and sometimes no side effects from their treatment. How side effects are managed is different too . Be sure to talk to your doctor about possible side effects before starting treatment so you know what to expect.

all treatment for ocular melanoma — everyone’s case is different.

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