An ocular melanoma (OM) diagnosis can be a scary and overwhelming experience, and it’s important to learn all you can about your diagnosis. The truth is, informed and empowered patients live longer, better lives. By arming yourself with knowledge, you’ll better understand what you’re up against. Soon, you will likely know more about melanoma than you ever thought possible. You will become familiar with terms and language you never knew before. You will understand the importance of regular skin exams, eye exams and the difference between an optometrist and an ophthalmologist. Researchers are also exploring new therapies in clinical trials that aim to improve outcomes and, in some cases, preserve vision. As a result of all of this knowledge, you may even help spread awareness about melanoma and early detection. This is not a community anyone wants to join. However, it is important to know that You Are Not Alone. At the end of this section, you will find ideas on how to connect with others who have been diagnosed and, if you’d like, ways to get involved in the fight against this disease. Just Diagnosed With Ocular Melanoma… Now What?
In this guide, words in dark blue are defined in the glossary on page 26 .
This guide was developed by the Melanoma Research Foundation’s CURE OM initiative, which focuses on increasing awareness, education and research funding for ocular melanoma while supporting those affected. To learn more, go to melanoma.org/cure-om/
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