About this report This Telling It Like It Is report draws on findings from the National End of Life Survey, as well as the wider evidence-base on older people’s experiences at end of life, to describe critical areas of importance to older people, and their families, facing death and bereavement. All quotes used in this report come from respondents to the National End of Life Survey. Details provided alongside each quote reference the relationship of the person who died to the bereaved relative providing the quote (for example, father, wife etc.), the age of the person who died, the setting they died in (home, nursing home, hospital or hospice), and the county where they died. Where percentages are used, these have been rounded to the nearest full number. The National End of Life Survey asked bereaved people about the end-of-life care provided to their loved ones at two distinct points in time – in the last three months of life and in the last two days of life. This report will focus on the experiences of people in the last three months of life. New analysis of the National End of Life Survey data Throughout the National End of Life Survey, respondents were asked to rate the care their loved ones received on a scale of 0-10 (with 0 indicating very poor care, and 10 indicating very good care). For this report, further statistical analysis was carried out to understand which factors independently contribute to a higher or lower overall care rating on the 0-10 scales. This analysis allowed a measure of the impact of individual factors (for example: the experience of communication or having access to particular healthcare professionals) on the 0-10 score, while accounting for other participant characteristics which might also influence this score (e.g. where in the country the person lived).
This symbol is used throughout the report where findings relate to this further predictive analysis.
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Telling It Like It Is
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