MHDA Research Conference Update: Co-Designing a Consumer Advisory Group at Macquarie Hospital
By Karen Klarnett & Sarah Mithoefer
At the 12th Annual MHDA Research Conference, held on 27 August 2025, our project “From Forums to Frameworks: Co-Designing a Consumer Advisory Group at Macquarie Hospital” was awarded Most Consumer / Carer Focused Presentation — a recognition that highlights the importance of embedding lived experience into service design and delivery.
This initiative reflects Macquarie Hospital’s commitment to NSQHS Standard 2 – Partnering with Consumers, and aligns with broader MHDA goals of fostering person-centred care and meaningful engagement.
Project Overview
The project explored the feasibility of establishing a Consumer Advisory Group (CAG) to provide structured, supported opportunities for consumers to contribute to service planning and improvement.
Over 50 consumers participated in focus groups across all program areas and units. The feedback revealed both strengths and gaps in current mechanisms: Strengths: Peer workers and nurses were praised for being approachable and responsive. Mutual Help Meetings were seen as valuable forums for sharing. Challenges: Consumers reported that feedback often lacked follow-up, was misunderstood, or felt unsafe to provide. Some expressed concerns about emotional vulnerability and fear of repercussions.
Recommendations
The project proposes a pilot CAG with the following features:
Small, supported group with training and remuneration - Multiple feedback formats (e.g. comment boxes, text lines, email)
Informal engagement opportunities such as BBQs and peer-led forums
Transparent follow-up and publication of feedback outcome
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