NEWLY DIAGNOSED: What I Wish I Knew...
with Lori Sackett
It took me some time to navigate and find the wonderful network of organizations like PEN which provided educational and emotional support for me and other myeloma patients. The critical need to be seen by a myeloma specialist at a large center. The gift of finding other MM patients and a coach to share information and support. Shared experience and connecting with others have been very helpful. Prognosis statistics are just that - statistics. While they guide treatment decisions, they do not definitively define my PFS or OS. A reminder, data is historical, not necessarily reflective of current drugs and treatment outcomes. Take hope from the abundance of myeloma trials and promising new treatments. Along with the physical and emotional pain, there have been and will continue to be some real gifts during this journey if you look for them.
Diagnosed in June 2019
Started KRD induction therapy in July 2019
Flow bone marrow biopsy analysis showed no myeloma cells in October 2019
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