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Individuals with Alzheimer’s disease and related dementias are often cared for by their family members or friends with the majority receiving care in their home. Family caregivers of individuals with Alzheimer’s disease and related dementias are sometimes referred to as the invisible second patient. While caring for a loved one is rich and fulfilling, the responsibility and demands of the role can also limit their ability and time to care for themselves. The requirements on family caregivers are substantial, even more so if you are caring for a loved one with Alzheimer’s disease and related dementias and this place them at higher risk for anxiety and depression. It is important not only to recognize the signs of stress but to have a support system in place, a plan to manage your stress and open communication with your healthcare provider regarding your own health and needs. The Alzheimer's Association has outlined 10 symptoms of caregiver stress for caregivers of individuals with Alzheimer’s disease and related dementias, as well as helpful hints on managing stress. 10 symptoms of caregiver stress 1. Denial about the disease and its effect on the person who has been diagnosed. 2. Anger at the person with Alzheimer’s or frustration that he or she can’t do the things they used to be able to do. and activities that used to make you feel good. 4. Anxiety about the future and facing another day. 5. Depression that breaks your spirit and affects your ability to cope. 3. Social withdrawal from friends
6. Exhaustion that makes it nearly impossible to complete necessary daily tasks. 7. Sleeplessness caused by a never- ending list of concerns. 8. Irritability that leads to moodiness and triggers negative responses and actions. 9. Lack of concentration that makes it difficult to perform familiar tasks. 10. Health problems that begin to take a mental and physical toll. If you experience any of these signs of stress on a regular basis, make time to talk to your doctor. Tips to manage stress • Know what community resources are available.
Memory Cafés PCOA is excited to announce that in partnership with Intermountain Centers for Human Development and La Posada we will be launching Memory Cafés in Pima County in the next several months to come. A Memory Café is a warm, welcoming environment for individuals with Alzheimer’s disease and related dementias. They are designed to include caregivers as well (if they are involved), for a shared experience. Additionally, they are helpful for people with all forms of mild cognitive impairment. Each Memory Café is unique, they focus on different aspects to create a distinctive experience for the individual with cognitive decline and their loved ones. Some Memory Cafés invite guest artists or musicians to attend, some offer education about memory changes, while others are just for relaxing and chatting. Memory Cafés can be offered both in person and virtually. It is important to understand that Memory Cafés are not support groups nor are they respite care. They are a place to talk with others who understand what you are going through, to forget your limitations and instead focus on strengths, socialize, and explore something new. All cafés share one goal – to help guests feel comfortable and to know that they are not alone. Stay tuned for more information about Memory Cafés starting in your area.
• Get help and find support. • Use relaxation techniques. • Get moving. • Find time for yourself. • Consider taking advantage of respite care. • Become an educated caregiver. • Take care of yourself. • Make legal and financial plans.
November is National Caregiver Month and while we know that the role of a caregiver is year-round, we encourage caregivers during this month to choose one way to honor and care for themselves with the level of intentionality and commitment they provide to their loved one. Caregiving is a big responsibility and is deserving of all our gratitude and recognition. Thank you for all that you do.
Memory concerns? Call the PCOA Helpline at 520.790.7262 or visit our website to complete a referral form online https://www.pcoa.org/dementiareferral/
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Pima Council on Aging
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