End of life Care & Terminal Diagnosis Advance Care Planning
• Disability Living Allowance (DLA) for children • Universal Credit
Even if you are applying under the special rules, you must still qualify for the benefit. Each benefit has different eligibility criteria. How to apply To apply under the Special Rules, a healthcare professional needs to complete a form to confirm that you have a terminal illness. This is either an SR1 medical report form, or a BASRiS form. Your healthcare professional will know which form to use. You must meet the eligibility criteria for the benefit you are applying for and have a terminal illness. Illnesses or conditions that can be considered terminal include cancer, organ failure, dementia, stroke, motor neurone disease, multiple sclerosis and other conditions. These illnesses are not always terminal. If you have questions about your illness, it’s best to speak with your healthcare professional. Application forms are not available for members of the public, it is only your health professional who can access the forms and they will send them to the relevant government department. Completing the SR1
It can be difficult to make plans about the type of treatment and care you or the person you care for might need in the future. Advance care planning can help to document what sort of care a person wants to have and who should be consulted if they become too unwell to make decisions. Advance Care Planning gives you the opportunity to think about, talk about and write down your wishes, preferences and priorities for your care. This includes how you would like to be cared for towards the end of your life. This can include anything that is important to you, no matter how insignificant it may appear.
An Advance Care Plan booklet is available to all in Northamptonshire.
www.nhft.nhs.uk/eoldevelopment
Or you can request a copy by contacting the PALS team on acp@nhft.nhs.uk or 0800 9178504. SR1 Special Rules When an adult or child is nearing the end of life, and they are likely to have less than 12 months to live you may be able to apply or be issued a SR1 form for Special Rules. This form has replaced a DS1500. https://www.gov.uk/government/publications/dwp-factual-medical-reports- guidance-for-healthcare-professionals/the-special-rules-how-the-benefit- system-supports-people-nearing-the-end-of-life Eligible benefits
The SR1 can be completed by a registered clinician such as:
• A hospital consultant • A GP • A hospice doctor
• A registered nurse e.g. advanced nurse practitioner, MacMillan nurse, clinical nurse specialist or a practice nurse with expertise in management of long- term conditions
The Special Rules apply to the following benefits:
• Personal Independence Payment (PIP) • Employment and Support Allowance (ESA) • Attendance Allowance
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