102 Session 1
Papers Topic - Classification Systems and Use of Terminology in ECI Advancing Comprehensive Early Childhood Intervention P1.07 ECI "Caseness": Defining Developmental Disability Beyond Diagnoses and Borders Presenting Author: Rune J. Simeonsson (USA) Affiliation: University of North Carolina; Jonkoping University Co-Authors: Eva Bjorck, Kirsten Ellingsen, Yi Ling Pan, Manuela Sanches Ferreira
Identifying children with neurodevelopmental disabilities is necessary for their access to early childhood intervention (ECI). Identification criteria, however, vary widely globally from specifying ICD diagnoses and/or test scores in high-income countries to developmental screening results in under-resourced countries. Identification variability: (1) impacts practice if criteria differentially include or exclude children from ECI access; and (2) restrains policy by limiting comparison of ECI populations within and across countries. The global mandate for ECI (UN SDG-Target4.2) necessitates common identification of children beyond diagnoses and borders. The ICF-CY taxonomy offers a universal language of codes that can harmonize identification of neurodevelopmental disabilities globally by linking identification criteria with published ECI code sets that profile both nature and severity of limitations of functioning. Working within the concept of “caseness” for ECI, identification and eligibility criteria in representative documents from Asia, Europe, Africa, and North America were linked to corresponding code sets for applicability in prescribing intervention and outcome monitoring. P1.08 How Inconsistent Use of Terminology Can Hinder the Development of Early Childhood Intervention Presenting Author: Tetyana Mishchuk (Ukraine) Affiliation: Dzherelo Centre for Social Services and Rehabilitation Co-Author: Anna Kukuruza The development of the ECI system in Ukraine has encountered difficulties in understanding between representatives of different sectors due to the use of similar terms with different meanings. Thus, in the medical field in Ukraine, the term "early intervention" began to be used to describe early medical rehabilitation of children, understanding the early detection and referral of children to specific care. There is confusion and substitution of concepts, losing the meaning of ECI. This trend is also observed at the international level. An example of this is the document Early Diagnosis of Cerebral Palsy in Clinical Practice (Cerebral Palsy Alliance, 2018). Such a misunderstanding can be encountered when talking with representatives of international organizations in Ukraine, for example, WHO. It would therefore be appropriate to organize an international group with representatives of the early intervention and medical communities, possibly with the involvement of WHO, to clearly define the terminology and its content. This would help to use such documents for lobbying and advocacy of ECI in different countries.
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