171
Posters Advancing Comprehensive Early Childhood Intervention
Session 3
HEALTH Topic - Cerebral Palsy
3.16 Bridging the Gap: Co-Creation in Knowledge Translation in the Field of Cerebral Palsy Presenting Author: Marjolijn Ketelaar (Netherlands) Affiliation: UMC Utrecht and De Hoogstraat Rehabilitation; Center of Excellence for Rehabilitation Medicine Co-Authors: Maureen Bult, Karen van Meeteren, Marij Roebroeck, Marike Willems, Jeanine Voorman In the last decades scientific knowledge on the development of children, adolescents, and young adults living with cerebral palsy (CP) has increased enormously. However, scientific knowledge does not automatically transfer to practice and families. To bridge the gap between research and real-world practice, knowledge translation is essential and needs to involve patients and families as the end-users. In this co-creation project focusing on development of children and youth with CP, relevant stakeholders were involved as equal partners throughout the design and decision-making process. Aiming to co-create useful information and tools for families, individuals with CP, and health care professionals Three main principles were applied to ensure all partners collaborated equally: a shared vision on collaboration and partnership, transparency: open and honest communication, and co-creation as a stepwise, iterative process. In the presentation the key principles will be discussed, the tools created will be presented, and we will reflect on the lessons learned. p3.17 Coaching Parents of a Child Who is Developing Diskinetic Cerebral Palsy: A Case Study Presenting Author: Jelena Spionjak (Croatia) Affiliation: Mali Day Care Center for Rehabilitation of Children and Young Adults, University of Applied Health Sciences In early intervention of high-risk children, the main role of experts is giving support to parents in understanding children’s needs and possibilities, and in strengthening parental competence in stimulation of overall development. The children who are at risk for developing cerebral palsy have difficulties with postural control and sensorimotor coordination. Therefore, they have insufficient variation and variability in motor behavior. We can observe that in the presence of simple, repetitive movement strategies and impaired ability to adapt motor behavior to specific situations, that influence on other developmental areas. This work is based on a case study of coaching parents of premature children who are developing dyskinetic type of cerebral palsy, in period from 1-3 years of child's age. Through video analysis coaching strategies will be presented on how to adopt parent handling during activities and how to adopt environment and activities to achieve quality in all developmental areas. p3.18 Functional Performance of Children and Adolescents With Cerebral Palsy: Association With Age and Gross Motor Function Level Presenting Author: Cejane Oliveira Martins Prudente (Brazil) Affiliation: Catholic University of Goiás (Pontifícia Universidade Católica de Goiás (PUC Goiás)) Co-Authors: Juliana Abegg, Francine Aguilera Rodrigues da Silva, Maysa Ferreira Martins Ribeiro, Victória Rita Paiva dos Santos, Thereza Cristina Rodrigues Abdalla Veríssimo We investigate the association between functional performance, age, and levels of the Gross Motor Function Classification System (GMFCS) in children and adolescents with Cerebral Palsy (CP). Methods: A cross-sectional study was conducted with 66 participants with CP from central-west Brazil. Caregivers completed the Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT), and normative scores were analyzed for the daily activities, mobility, and social- cognitive domains. Results: The mean age was 5.91±2.89 years. Scores for daily activities (26.53±12.28) and mobility (22.02±13.46) were below expected, while social-cognitive performance (32.95±12.21) was within normal limits. Participants in GMFCS levels IV and V showed significantly lower performance across all domains compared to those in levels I-III. A negative correlation was found between age and performance in all domains. Conclusion: Children and adolescents with CP present delays in daily activities and mobility, especially in more severe cases and with increasing age. p3.19 Mini-Eating and -Drinking Ability Classification System: Content Validation of the Portuguese Translation Presenting Author: Ana Filipa Santos (Portugal) The Mini Eating and Drinking Ability Classification System (m- EDACS) assesses the eating and drinking skills of children with cerebral palsy (CP) aged 18–36 months. This study validated the Portuguese adaptation of m-EDACS, ensuring its clarity and relevance for professionals. Following internationally recognized translation guidelines, the process included translation, back- translation, and expert committee review to address cultural and linguistic differences. A panel of 10 professionals from diverse fields, including nutrition, occupational therapy, and medicine, evaluated 55 descriptive phrases for relevance, clarity, and comprehensibility using a 4-point scale. An Item Content Validation Index (I-CVI) threshold of 0.78 confirmed content adequacy. Most items (75%) achieved the highest possible I-CVI scores, and two phrases were refined for clarity. The Portuguese m-EDACS demonstrated strong content validity and consensus among experts, making it a valuable tool for healthcare professionals to evaluate the eating and drinking abilities of children with CP. Affiliation: School of Health, P. Porto and Porto Cerebral Palsy Association, Portugal Co-Authors: Joaquim Alvarelhão, Maria Reyes Pérez Fernández, Diane Sellers
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