News
PERT Shortage Update December 2024 Our latest update on PERT
We have been working with our community and fellow charities to continue to seek solutions to current PERT supply issues. Our collaborative working group of charities and patient organisations continues to meet monthly and firmly believes that:
“Patients cannot “go without” this medication. This can have significant adverse health effects.” (Philips et al. 2024).
CLICK HERE for this month’s update on our website.
PLEASE NOTE: Re-launch of PERT Survey is planned for January 2025. Please never doubt that your voice is heard – and that we are here to help.
We would once again like to thank those who have completed our PERT survey earlier in the year.
This provided voices and experiences to available numbers and figures, allowing us to illustrate how important this medication is and how vital addressing current shortages are. We plan to re-open the survey In January: and would ask those who have previously completed it to please do so again: as this may help us to see if there has been a change – for better or worse – so that we can further concentrate our focus and efforts. We would also welcome input from those, who take PERT, who did not take part in the earlier survey, even if you have had no difficulty in PERT supply! We are rather concerned that lower numbers of calls regarding this problem does not necessarily mean an improvement in supply.
We will add a link to the survey on our website in January and let you know when it is officially open via our News page and SM platforms.
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