Support to the Field
Rare Subtype Focus COMMUNITY UNITED FOR RESEARCH AND EDUCATION OF OCULAR MELANOMA (CURE OM) In 2011, the MRF launched CURE OM to focus solely on advancing the goals of the ocular melanoma community. To date, CURE OM has provided almost 2.6M in research grants, held numerous scientific conferences and educational patient meetings. In 2021, CURE OM launched a first of its kind patient-reported OM registry (www.visionregistry.org) and continues to advocate for the ocular melanoma community to improve the lives of people impacted by this disease. PEDIATRIC/ADOLESCENT AND YOUNG ADULT (AYA) AND MUCOSAL (MM)/ACRAL LENTIGINOUS (ALM) MELANOMA The MRF has launched initiatives that focus on pediatric and AYA melanoma patients and MM/ALM. As such, the MRF is supporting grants focused on pediatric/AYA melanoma as well as MM/ALM. With respect to pediatric/ AYA melanoma, the MRF sponsors an Annual Pediatric or AYA Summit each year so that patients/families can come together and learn the latest in medical treatments/research and find support. With respect to MM, the MRF held its inaugural investigator/patient meeting in 2022 focused on this rare disease; the next meeting will be in 2026. In addition, the MRF also launched its MM Translational Working Group which convenes quarterly to focus on MM clinical trials, research, and collaborative opportunities. Future goals include the creation of a MM patient and caregiver guide.
Partnership with the Society for Melanoma Research to sponsor annual investigator awards and satellite symposia.
Partnership with Conquer Cancer, the ASCO Foundation, to provide a merit award each year to a promising investigator in melanoma.
Scientific meetings that address key focus areas, e.g., brain metastases, equity/access and consensus on gene expression profiling in cutaneous melanoma.
In 2024, the MRF celebrated four healthcare providers and researchers with awards at Galas in Denver and New York City.
The MRF has robust patient and caregiver support resources provided at no cost through its Education Institute. More information can be found at www.melanoma.org/ educationinstitute. More information about the MRF, its programs and its scientific leadership can be found at www.melanoma.org.
Patient Perspective Incorporating a patient-centric approach to the grant review process, a patient review panel ensures that patient and caregiver priorities are reflected in the research funding process. If you are interested in participating in such a panel, please sign up for more information by scanning this code:
Made with FlippingBook Ebook Creator