Findings of the National End of Life Survey | 2023
Appendix 2: Who took part in the National End of Life Survey 2023? People invited to take part In total, 9,449 people met the eligibility criteria for the National End of Life Survey 2023 and were invited to participate. 57 A total of 408 people opted out of the survey. In total, 4,570 people returned a valid survey. This represents a national response rate of 48.4%. The group whose relative or friend died at home had the highest response rate, with 52.4% of patients returning a questionnaire. Table A shows the number of people eligible and invited to participate in the National End of Life Survey. It also indicates how many people took part and gives the corresponding response rate for each setting of care.
Table A.
Number of people invited to participate, response numbers and response rate by setting of care
Group
Number invited to take part
Number of participants
Response rate (%)
National (total)
9,446
4,570
48.4%
Home
1,950
1,022
52.4% 50.0% 44.6% 51.1% 38.7% 44.3%
Hospice Hospital
913
456
4,058 2,409
1,810 1,231
Nursing Home
Other residential care
31 88
12 39
Rehabilitation and Community Hospital
Characteristics of survey respondents To get a better understanding of who participated in the National End of Life Survey, the questionnaire included demographic questions. This information was important to establish if the people who responded to the survey represented all sections of society. Of the respondents, 31.7% were male and 68.0% were female. People aged 50 to 59 years accounted for 32.1% of survey respondents, with 27.1% aged 60 to 69 years. The vast majority of respondents (96.1%) indicated having a white, Irish ethnic background. Tables B summarises the characteristics of the survey respondents by sex, age and ethnic group.
57 There were three ‘return to sender’ invitations, leaving the eligible sample at 9,446.
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