Findings of the National End of Life Survey | 2023
Q12. Did someone from a hospice, community palliative care team, or any other specialist palliative care service visit them at home in the last three months of their life? 1 Yes 2 No, this was not needed 3 No, this was not offered 4 Don’t know Q13. While at home, did healthcare staff help and support them with accessing additional equipment for their home, or making minor adaptations to their home? 1 Yes, definitely 2 Yes, to some extent 3 No
Q17. While at home, if they needed help from healthcare staff, did they get it as soon as they needed it? 1 Yes, always 2 Yes, sometimes 3 No
They did not need any help from healthcare staff
4
Q18. Overall, while they were at home, did healthcare staff answer any questions you had in a way that you could understand? 1 Yes, always 2 Yes, sometimes 3 No 4 I didn’t have any questions Q19. Overall, while they were at home, did you have confidence and trust in the healthcare staff treating them? 1 Yes, always 2 Yes, sometimes 3 No Q20. While at home, did the healthcare staff give you enough help and support to care for them? 1 Yes, definitely 2 Yes, to some extent 3 No 4 I did not need help with this 5 Don’t know Q21. Overall, how would you rate the care your relative or friend got at home from healthcare staff in the last three months of their life? (Please circle a number) They received very poor care They received very good care 0 1 2 3 4 5 6 7 8 9 10
They did not need additional equipment or adaptations to the home
4
Don’t know
5
Q14. While at home, if they experienced pain, did healthcare staff do everything they could to relieve it? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not have any pain symptoms other than pain (such as nausea, constipation, breathing difficulties or restlessness), did healthcare staff do everything they could to relieve them? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not need help with this Q15. While at home, if they experienced Q16. While at home, did healthcare staff help and support them with their emotional needs (e.g. feeling worried, feeling anxious, feeling low, etc.)? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not need help with this 5 Don’t know
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