Findings of the National End of Life Survey | 2023
Q68.
During the last two days of their life, if they experienced pain, did healthcare staff do everything they could to relieve it? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not have any pain 5 Don’t know During the last two days of their life, if they experienced symptoms other than pain (such as nausea, constipation, breathing difficulties or restlessness), did healthcare staff do everything they could to relieve them? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not have any symptoms During the last two days of their life, did healthcare staff help and support them with their emotional needs (e.g. feeling worried, feeling anxious, feeling low etc.)? 1 Yes, definitely 2 Yes, to some extent 3 No 4 They did not need help with this 5 Don’t know During the last two days of their life, did healthcare staff provide support to meet their religious or spiritual needs (things like talking, praying, quiet time or access to a religious or spiritual leader) 1 Yes, always 2 Yes, sometimes 3 No 4 They did not need help with this 5 Don’t know During the last two days of their life, did they get enough help from healthcare staff to eat or drink? 1 Yes, always 2 Yes, sometimes 3 No 4 They did not want help 5 They were not able to eat or drink 6 Don’t know
3.1
Experience of care in the last two days of life
The following questions are about the experience of care in the last two days of life. We understand that it may be difficult to reflect on this experience and we appreciate you taking the time to answer the questions. If you had no contact with your relative or friend in the last two days of life, please go to Q101.
Q69.
Q65.
During the last two days of their life, was your relative or friend cared for:
At home or in the home of a family mem- ber or friend. In a nursing home/residential care facility In an acute hospital (a hospital that has an emergency department, or urgent care centre and provides services for inpa- tients, outpatients and day-case treat- ments)
1
2
3
Q70.
In a hospice
4 5
Somewhere else
I had no contact with my relative or friend in the last two days of life GO TO Q101.
6
Q66.
During the last two days of their life, did the bed area and surrounding environment have adequate privacy for them? 1 Yes, definitely 2 Yes, to some extent 3 No 4 I was not with them in the last two days 5 Does not apply to our situation During the last two days of their life, were you offered… (Tick all that apply)
Q71.
Q67.
A family room with adequate peace and privacy for you to meet with healthcare staff A family room with tea and coffee making facilities The option to visit at any time, including outside of regular visiting hours
Q72.
1
2
3
The option to stay overnight I was not offered any of these Does not apply to our situation
4 5 6
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