Findings of the National End of Life Survey | 2023
Table 2.1
List of comment codes
Communication – staff with staff Communication – staff with deceased Communication – staff with respondent
Feedback and complaints process
Admin staff General staff
GPs
HCAs (Health Care Assistant)
Public health nurse (PHN), District/ community nurse
Ambulance service
Community health
Doctors
Homecare and home help
Involvement in patient decisions
Diagnosis and tests
Nurses
Staffing – access to specific palliative care expertise and training
Food and nutrition
Caring for patients with specific specialist needs
Coordination of care within settings
Continuity of care across care settings
Pain management
Staffing levels, availability and responsiveness Urgent or out of hours support
Symptom and medication management Medical needs and equipment
Psychosocial, emotional, spiritual and cultural support for deceased
Access to and availability of local care
Experience of care (Home/Community)
General quality of care
Model of care (public/private)/Private Insurance issues
Experience of care (Hospice)
ED/A&E experiences
Impact of COVID
Dignity, respect, privacy, compassion, kindness
Experience of care (Hospital)
Experience of care (Nursing Home) Facilities – end of life (hospital/nursing home/hospice). Facilities – general (hospital/nursing home/ hospice)
Resources for respondent
Personal belongings
Psychosocial, emotional, spiritual and cultural support for family Financial and legal impacts of caring
Ward environment
Visiting Timing of end-of-life care General comments that are negative, neutral Care at time of death General appreciation, gratitude, a non-specific positive comment
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