IHF NELS Report 2023

Findings of the National End of Life Survey | 2023

The survey asked about the experiences of people who received care or died in various settings including hospitals, nursing homes, hospices and in their homes. In many cases, the people who died received care across more than one of these settings in the last months and days of their lives. While it is not possible to definitively map all movements between these settings and services, this chapter provides an overview of the typical journeys experienced in the last months and days of life. It was evident that participants’ relatives and friends typically received care in more than one setting in their last months and days. Table 6.1 shows that of the 4,570 survey responses, 7,375 settings of care were described, indicating that those who died received care in approximately 1.6 settings on average. More than half of survey respondents indicated that their relative or friend had received care in hospital in the last three months, followed by care at home as the next most frequently identified care setting.

Table 6.1

Settings where people received care in the last three months

Setting

Number of responses

Home

2,525 1,671 2,639

Nursing home

Hospital Hospice

540

Total

7,375

Question 88 asked participants where their relative or friend died, with the results shown in Table 6.2. The most common place of death was a hospital (39.4%), followed by a nursing home, home and hospice. Table 6.2 Place of death 53

Setting

Number of responses

Percentage

Home

1,025 1,251 1,799

22.4% 27.4% 39.4% 10.7%

Nursing home

Hospital Hospice

487

Other settings

8

0.2%

Total

4,570

100.0%

96

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