Australia’s Only Youth Hospice Pharmacist Joey Chan is the senior pharmacist at the Adolescent and Young Adult Hospice (AYAH) in Manly, the first-ever role of its kind in
neurodegenerative diseases or congenital disorders. These conditions require a distinct medication approach.
Australia. With over 20 years of experience, Joey transitioned from adult palliative care and acute medication to specialise in the adolescent and young adult space when AYAH opened in 2023. Joey said the role differs significantly from adult clinical pharmacy. While adult palliative care often focuses on patients with oncological diagnoses, the AYA space involves treating patients with complex, chronic conditions like
“There’s more to my role than just end-of- life care,” Joey said. “I wish more people understood that palliative care is not solely about end- of-life; it’s about improving quality of life, managing symptoms, and supporting both the patient and their family through difficult times.” Joey also highlighted a common misconception. “Palliative care is often seen as tied to loss and grief, but in reality, there are many moments of joy and meaningful connections, especially for families and patients who come to AYAH for respite care,” she said. “The focus is on living as fully as possible, no matter what stage a patient is in.”
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