Ryan House 2022 Annual Report

We are pleased to share our 2022 Annual Report. Thank you for your continued support! Because of you, we're able to continue our mission-critical work for children with life-limiting conditions and their families. 

MISSION Ryan House enriches the quality of life and creates cherished memories for children and their families, providing a much-needed break from 24/7 caregiving, as they navigate life-limiting or end-of- life journeys. VISION We believe that everyone deserves care, dignity, peace, and compassion, especially as they face the unimaginable challenges of a life-limiting condition. As a leader in children’s palliative care, our goal is twofold: Providing care to children and their families and sharing information with other communities to assist them in developing their own unique models of care to help more families in need. VALUES Our values encompass everyone in our community. Care : We provide loving care and enhance the quality of life for children and families. People : We nurture relationships built on mutual trust. Compassion : We navigate challenging situations with kindness and love. Dignity : We honor and respect the unique journeys of all children and their families. Peace : We embrace children and their families while offering comfort and support in a homelike environment.



Everyone deserves care, dignity, peace, and compassion.

Greetings and thank you for your generosity this year! We’ve been hard at work this past year enriching the quality of life and creating cherished memories for the children and families we serve while providing a much- needed break from 24/7 caregiving, as they navigate life-limiting or end-of-life journeys. Ryan House simply would not be what it is today if it weren’t for your support. It’s because of you that we can continue to provide a loving community where children can truly be themselves and live their lives to the fullest in a safe, homelike environment. Inside this year’s annual report, you’ll see the direct impact that your support has made this past year which enabled us to enroll 294 children and families in our respite program and provide 27,792 hours of respite care to 101 children with life limiting conditions and support 54 children and their families at end-of-life. You’ll also learn more about longtime Ryan House supporter, Sequoia, an innovative, people first benefit provider that has been supporting Ryan House since 2018. They have contributed volunteer hours, direct financial support, and collected hundreds of items from our wish list. The collective efforts of our partnership with Hospice of the Valley, our loving, compassionate, and caring staff, dedicated volunteers, committed leadership team, and diverse Board of Directors and committee members work together to strengthen and inspire the children and families we support which greatly contributes to Ryan House’s ability to effectively steward the support they receive from you. We believe that everyone deserves care, dignity, peace, and compassion, especially as they face the unimaginable challenges of a life-limiting condition and that is why your continued support is so critical and so very appreciated! For that and so much more, we thank you.

2022 Board of Directors

Members Rhonda Anderson

Ex-Officio Members Rachel Behrendt, DNP, RN, NEA-BC Senior Vice President, Operations, Hospice of the Valley Tracy Leonard-Warner, MHI, MT-BC Executive Director

Executive Committee Bob Serr - Chair Kathy Hanley - Vice Chair Rob Maver - Treasurer Alan Meda - Secretary

Keeley Dean Oliver Fultz

Tom Jarvis Rita Meiser Shannon Schroeder Mary Thompson

Rob Guthrie - Member at Large Ashley Crowell - Member at Large

From our hearts to yours,

Tracy Leonard-Warner, MHI, MT-BC Executive Director

Bob Serr, Board Chair



Respite Care Respite care is a gift of time; short-term overnight stays that help a family take breaks from the stress of 24/7 home care.

Palliative Care Palliative care aims to holistically identify and alleviate the physical, psychosocial, spiritual, and emotional pain for both the child and the family, enhance quality of life and minimize suffering. Pediatric End-of-Life Care Families with a child facing end-of-life receive supportive planning and compassionate care consistent with clinical, cultural, and ethical standards. Grief and Bereavement Support We offer Sibling Bridges of Support and Hope, family counseling through various programs, a memorial wall, an annual community event to honor children who have died, and Treasured Memories boxes to families that are filled with special keepsakes. Life-Enhancing Therapeutic Activities Certified child life specialist, certified music therapist and trained volunteers provide activities that address the isolation, pain, and fear children and siblings face with diagnosis and improve quality of life.

Live Life To The Fullest



Sequoia’s Deep Commitment to Social Impact

Relationships are the cornerstone of living a full life. At Ryan House, we witness this every day with the children and families we serve. In fact, we’re often told that many of their most cherished memories come from the people they meet at Ryan House and the bonds they form during their stays. Ryan House is grateful to share these values not just with the families we serve but also with many of our community supporters, including Sequoia Consulting Group, an organization that has given an abundance of time and resources over the years. Sequoia, like Ryan House, is in the relationship business. They help companies manage and measure all the ways they invest in their people, from healthcare benefits to compensation to HR administration and workforce analytics. Considering the work they do in healthcare, it’s natural for Sequoia to have a strong emphasis on social impact in supporting organizations like Ryan House. Sequoia’s Social Impact Program focuses on three pillars: health and wellbeing, economic opportunity and employment, and access to quality education for youth in need. “We engage our global team in their local impact endeavors, and in every office location we partner with non-profits that uphold these pillars,” said Diann Lawson, director of social impact for Sequoia. “We want to have close relationships with our non-profit partners, which means that we advocate for their cause, volunteer with them, get to know them personally, and provide financial support. Our goal is to empower our non-profit partners to serve their clients and to create lasting and transformative change in the communities where we live and work.” Sequoia first learned about Ryan House when its Arizona-based Senior Client Experience Manager, Alex Dembow, attended our annual Community Breakfast fundraiser in 2018 and instantly knew Sequoia would want to champion Ryan House’s meaningful cause. They did. Since that time, Sequoia has hosted pantry

and holiday toy donation drives, cooked and served meals for families attending Enduring Ties dinners, and volunteered at Ryan House events. Most recently, Sequoia hosted a networking event at their Tempe office and featured Ryan House as their non-profit partner to raise local awareness for our mission. Sequoia is so invested in its social impact values that when the company meets its social impact goals, employees are given a bonus that they’re able to direct to one of their non-profit partners. Last year, Sequoia was able to write a significant check to Ryan House on behalf of the employees who felt moved to support our mission. “It’s a testament to our team, and it’s really clear that we care about this organization and want to continue to support, raise awareness for, and care for these families,” Lawson proudly shared. “One of the ways we define success as a business is how we support our communities in need.” Dembow added that it’s fulfilling to see Sequoia invest so heavily in Ryan House and take a genuine interest in building relationships within Ryan House’s community. “It’s so special to have that footprint that’s bigger than us and to see the kids who are at Ryan House benefit from our support,” Dembow said. “It gives us a chance to think bigger than our day-to-day corporate work.” Dembow also shared how Ryan House truly is a special place. Their staff is always adding what she calls “sparkle” to the lives of those around them and provides a special touch to make everyone’s days brighter and more meaningful. “There’s such care and lightness at Ryan House,” she said. “They go out of their way to make people feel supported and cared for, and I think that’s really beautiful.” Lawson followed by sharing that the Sequoia team is honored to have a strong relationship with Ryan House and looks forward to their continued partnership.

“One of the ways we define success as a business is how we support our communities in need.”

8 10


In FY 22, 294 children and families were enrolled in our respite program. Ryan House provided 27,792 hours of respite care to 101 children with life-limiting conditions and supported 54 children and their families at end-of-life. Approximately 92% of the children qualifying for services at Ryan House reside in Maricopa County.

Impact of Your Giving

Who We Serve

100% of families are able to participate in activities that are meaningful to them 100% of families feel connected to a community of support

FY 22 Diagnoses


Respiratory System Disorders 2%

Other 10%

White 42%

Neurodevelopment & Nervous System Disorders 47%

Other/ Multi-Racial 12%

Black/African American and White 3%

Congenital Malformations & Chromosomal Abnormalities 32%

African American 5%

Asian 3% American Indian/ Alaskan Native and White 6%

Hispanic 29%

Endocrine Metabolic Disorders 6%

Trauma IE: Near Drowning, Motor Vehicle Accident 3%



FY22 Financial Snapshot

Circle of Friends Giving Society


Assets Current Assets


Announcing Ryan House’s new Circle of Friends Giving Society - an exclusive group of supporters with donations of $1,000 or more in mission-critical funds during a calendar year. As an organization that relies solely on contributions, your commitment and generosity is the reason that we can continue caring for children and their families as they navigate life-limiting and end-of-life journeys. We truly appreciate you and the support you give to Ryan House kids and families.

$ 5,297,742

$ 5,835,887 $ 219,561

Long Term Assets



Total Assets

$ 5,520,774 $ 6,055,448

Rhonda and Gary Anderson Marisa Aragon Joel Arthur Adrian Balderrama Cherry and Peter Baumbusch Michaile Berg Marcy and Richard Bern Anna and Craig Berry Sarah and Jeff Birchall Kenlyn Blecker Maggy Blohm Nancy and George Bogle Elaine Bohn Kristina Brown Marjorie Buchanan James Burriss Judi and Budd Busche Kristin Buser Sue and Irby Cain Winston Carter James Caviness Diane Cook Holly and Jonathan Cottor Sharon Cottor Thomas and Sharolyn Crotty Debra and Mike Crouch Ashley and Zack Crowell Sheryl and Robert Damico Christie and Michael Darby Nancy Davidson Richard Davis Edra Drake Julie Dunnigan Diane and John Eckstein Colleen and Jim Edwards Melissa and Danny Estavillo Dave Finney Mary Flynn Tara and Daniel Franks Elle and Oliver Fultz Julie and Dieter Gable Jeanne Gibian

Suzanne Gladden Jeff Gordon Kathleen and John Graham Mara Greenberg Kathy and Dan Grubb Christine and Rob Guthrie Susan and Philip Hagenah Kathleen and Michael Hanley Lorraine Hawley Jeanne and Frank Hertz Denise and David Higgins Cheryl Hintzen-Gaines and Ira Gaines Cheryl and Timothy Hoenig Lynn Hoffman Brenda and James Howard Linda Hunt Jane Iacobelli Susan and James Janik William Jenkins Gina and Herb Jernukian Dana and Gordon Keig Joy and Charles Kelley Diana and Howard Krasnow J. Penny Larson M. Shawn Lampe Bonnie Larussa Tracy Leonard-Warner and Randall Warner Lynn and Marc Lerner Gerald Lewis Linda LeWitter Nancy Lichter Ann Lindner Cassandra and Chad Littell Thomas Maher Jill and Rick Marlette Sang Hee and Rob Maver Marty and Bob McAllister Paul and Carla McMullin Amy and Alan Meda Marlene and Robert Mirabelli

Diana and Franklin Mitchell Srimathy and Gopalakrishnan Mohan Connie Moore Carole and Arte Moreno Bill Moroney Christall Morris Kathleen Mundy and Fred Hessler Rob Mroz Jill and Gene Nagel Ann and John Norling Nancy Okstein Lindsey and Joseph O’Sullivan Andrea and John Pappas Diane and Raymond Pava Megan and Roger Peacock Karrie and James Pierson Linda and Michael Powers John Propstra Erika Pumphrey Deborah and Patrick Riley Kiffie and Chris Robbins Donna and John Romanow Eileen Rominger Rich Ryan Robert Ryan Patrick Quinn Shelly Rahav Scott Sellers Alisha Sellers Richard Serr Pam and Bob Serr Richard Simon Jill and Eric Simpson Maria and Steven Simpson Laura and David Sliman Dana and Kevin Smith Missy and Andrew Smith Mark Sammons Pamela Sanders Eric Sass Wade Schrotenboer

Liz and Christopher Sokolowski Jaime and Anthony Spinato Eric St. Pierre Jeanne and Bob Sterrett Gail and Geoff Stickler Lisa Socie and Jeff Huff Nancy Taylor Mary and Duane Thompson Laura and Jeff Tolson Carrie and Brad Tolstedt Pat Treeful Derek Troya Kathleen and Meyer Turken Melissa Vandewater Jeffrey Vandrie Deborah and Michael Wagner Kurtis Wahl Maureen Walz Marilyn Ward Sue Weeks Salmans and Van Salmans Judith and Joel Weinstein Cindy and Paul Weiser Kerry and Andy Welch Trevor White Joy Wili Marilyn and Ralph Wilson Brian Winski Myra and Steve Wolfley DJ Younggren Ferne Zabezensky Barbara and Barry Zemel

Liabilities Current Liabilities Total Liabilities

$ 444,218 $352,882 $ 444,218 $646,653*

Net Assets Without Donor Restrictions With Donor Restrictions

$ $


$ 3,999,374 $ 216,053


Total Net Assets

$ 5,076,556 $ 4,215,427

Total Liabilities and Net Assets *Includes Paycheck Protection Program Loan

$ 5,520,774 $ 4,862,080

Statement of Activities for the Year Ended September 30, 2022

Total Support and Revenue

$ 2,517,094 $ 3,143,959 $ (626,865)

$ 2,729,770 $ 2,852,097 $ (122,327)

Total Expenses

Change in Net Assets

Expense Allocations

Sources of Operating Support & Revenue

Fundraising 16%

Grants & Contracts 36%

Events 17%

Administration 7%

Mail Appeals Tax Credit 8%

In-Kind 14%

Program Services 77%

Corporations & Organizations 8%

Individuals 17%



Jill & Gene Nagel National Bank of Arizona Otto & Edna Neely Foundation Karrie & James F. Pierson, III Plexus Worldwide Leslie Propstra Rowley Family Foundation Shutterfly SRP Kristin & Drew Stanton Faye & Tom Tait The Charro Foundation The David E Reese Family Foundation The Estate of Rocco Emma The Moreno Family Foundation United States Tennis Association, Inc. Jacque Weiss & Richard Glazer, D.M.D. West Valley Lutheran Thrift Shop Western Alliance Bank of Arizona Marylou & Carlos J. Zilveti $25,000 - $49,999 Patricia & Patrick Althoff Arciterra Arizona Commercial Real Estate Women Arizona Diamondbacks Foundation Azadi Bashas’ Judith & Budd Busche David Cantelme Shannon & Ted Chapman Susie & Wally Chester Christopher & Dana Reeve Foundation City of Phoenix Clean Machine Car Wash LLC CopperPoint Mutual Insurance Company Holly & Jonathan Cottor Cox Charities

Liam’s Room Louis Legacy Foundation Major League Conditioning Ina & Murray Manaster Teresa & Todd Miller Srimathy & Gopalakrishnan Mohan Michelle & Marc Morris PGA Tour, Inc. Rodger & Kate Graef Family Foundation Ryan Companies Werner Schumacher Sequoia Shirley C. Caris Family Foundation Suzanne Sikora Liz & Christopher Sokolowski Anne & James W. Spellman Sundt Construction Susan & Richard Hare Family Foundation Synergos Companies The Alberta B. Farrington Foundation The Arizona Republic The Bob and Renee Parsons Foundation The Bruce T. Halle Family Foundation The Keller Foundation The Pakis Family Foundation The Power Open, Inc The Saguaros The Walmart Foundation Lynn & Chip Tolleson TriWest Healthcare Alliance Valley Anesthesiology Foundation Valley of the Sun Active 20/30 Vitalyst Cindy & Michael Watts Sue Weeks Salmans & Van Salmans Cindy & Paul Weiser Wentworth Property Company William L. & Ruth T. Pendleton Memorial Fund Diane Willian

We are honored to recognize our most generous donors since our founding in 2004 . This group has supported the children and families of Ryan House with cumulative gifts or pledges or qualifying planned gifts of $25,000 or more through September 30, 2022.

Lifetime Giving Honor Roll

Over $1,000,000 Arizona Department of Health Services Gila River Indian Community Hospice of the Valley Salt River Pima - Maricopa Indian Community The Board of Visitors Virginia G. Piper Charitable Trust $500,000 - $999,999 The Kemper & Ethel Marley Foundation Three Desert Winds Foundation Thunderbirds Charities $100,000 - $499,999 Arizona Biz Bash Inc Arizona Central Credit Union Arizona Diamondbacks Arizona Eastern Star Foundation Arizona Elks Major Projects Bank of America BHHS Legacy Foundation Blue Cross Blue Shield of AZ Community Health Charities Dutch Bros Coffee Executive Council Charities & The SAY Campaign Fiesta Bowl Kathleen & Michael Hanley Karen & Robert C. Hobbs, Sr. Lynn Hoffman John and Alice Powers Foundation Joy Wili/Pam & Bob Serr/Paisley Mae Foundation Junior League of Phoenix Kitchell Corporation Maricopa County

John Propstra Judy & Bill Schubert Southwest Gas Corporation State of Arizona The DeMatteis Family Foundation The Estate of F Theodore & Diane E Reid

The Humana Foundation The Steele Foundation True Story Films ViaSun

$50,000 - $99,999 Alan D. & Wendy R. Wilson Foundation Arizona Coyotes Foundation Arizona Public Service Nancy & George Bogle Cardinals Charities Cristina & Trevor Chait Colten Cowell Foundation Sharon & Robert* Cottor, M.D. David & Ruth S Coleman Foundation DC Ranch Community Foundation - Heartstrings Doris Lumsden Foundation Edra Drake Gases and Welding Distributors Association Goodwill of Central & Northern Arizona Cheryl Hintzen-Gaines & Ira Gaines Jane & Mario* Iacobelli IFDA J.P. Morgan Chase & Co. Diane & John Eckstein, M.D. Fort McDowell Yavapai Nation Jessica Jennifer Cohen Foundation II Joan C. Ray Charitable Foundation

Davidson Family Foundation Davignon Charitable Fund DC Ranch Community Council Dignity Health Karen & David Divine Jacquie & Bennett Dorrance Colleen & Jim Edwards Elks National Foundation Nancy Eriksson Excellence in Giving Christine & Robert Guthrie Susan & Philip Hagenah Patrick Harlan Jeanne & Gary* Herberger Claudia & Ray Herzog Denise & David Higgins

Willmeng Construction Zilveti Family Foundation * In memoriam

Diana & Howard Krasnow McDonough Corporation Mercy Care Connie Moore

Nina Mason Pulliam Charitable Trust Paul Chait Memorial Golf Tournament Phoenix Suns Charities Bob Powers

Randy & Earl G. Kendrick, Jr. J.W. Kieckhefer Foundation Kappa Kappa Gamma – Epsilon Delta Larry H. Miller Charities



ryanhouse.org 110 W Muhammad Ali Way, 1st Floor Phoenix, AZ 85013 602-200-0767 info@ryanhouse.org



We are 100% funded by donations. As a registered 501(c)(3) and Arizona qualifying charitable organization, any donation made, including your Arizona charitable tax credit, is tax deductible. Allocating your donation to Ryan House serves as a lifeline to our families.

As a 501(c)(3), Ryan House is eligible to receive stocks, bequests and legacy gifts. Please call (602) 200-0767 for more information.

Cover photo courtesy of Ruby Rideout Photography.


Page 1 Page 2-3 Page 4-5 Page 6-7 Page 8-9 Page 10-11 Page 12-13 Page 14-15 Page 16

Made with FlippingBook interactive PDF creator