Restlessness & Agitation
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RESTLESSNESS & AGITATION
As a person gets closer to death, or as a disease progresses - particularly neurological and cognitive dis- orders such as dementia, stroke, brain tumors or brain metastases - it is common to become restless or agitated. This is often referred to as terminal restlessness. Sometimes the patient is aware of this restlessness but can’t remain still or give a reason why they are uncomfortable. Other times, they become completely disoriented and unable to carry on a conversation. Please remember that this is the disease process causing these behaviors and does not reflect your loved one’s deeper feelings. During this time, there is an increased risk for falls and injuries. Close observation and intervention is required for safety.
NON-MEDICAL WAYS TO HELP WITH AGITATION: • Stay calm and gently remind your loved one they are safe and cared for • Place familiar objects like family photos in the room • Use glasses, hearing aids and dentures, if appro- priate • Ask for help if they need to urinate or have a bowel movement • Ask for a Chaplain, Music Therapist, or Social Worker to come visit. Sometimes spiritual or emotional concerns come out in the form of restlessness or agitation. These team members can help support your loved one with these con- cerns. • Allow for peaceful sleep • Remember to care for yourself - this is difficult These symptoms may be upsetting to see. We want you to know that the team at Elizabeth House is here to help, so please let us know if you have any questions or concerns.
THE PATIENT MAY EXHIBIT ANY OF THE FOLLOWING: • Inability to sit still or get comfortable in any posi- tion, attempting to get out of bed • Pulling or picking at blankets or clothes • Raising arms or legs in the air • Feeling of “I have to go…” • New disorientation or confusion; inability to fol- low conversation or commands • Fear, yelling out • Aggressive movements like kicking or hitting • Hallucinations or talking to people who are not pre- sent, including loved ones or pets who have died COMMON MEDICATIONS AT ELIZABETH HOUSE FOR RESTLESSNESS: Ativan (lorazepam), Haldol (haloperidol), Seroquel (quetiapine), phenobarbital, Versed (midazolam)
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