AYAH Patient and Family Orientation Pack

Northern Sydney Local Health District

Patient and Family Orientation Pack

Adolescent and Young Adult Hospice (AYAH)

Contents

What to expect during your stay

AYAH policy information

Facility information

Specialised services available

Welcoming visitors to the AYAH

Local sights, eateries, attractions and discounts

Carer support

Notes

Patient and Family Orientation Pack

This booklet is designed to help you better understand what is offered at the AYAH facility and what you as a patient, family member, companion or carer will have access to during your stay.

Adolescent and Young Adult Hospice (AYAH)

Please read this section carefully prior to arrival at the AYAH

What to expect during your stay Our goal at the AYAH is to create an environment that feels like a home away from home. We want you to feel comfortable, safe and understood. At any time during your stay if you have any questions, or are unsure

of any procedures, please feel free to ask our friendly staff. To help set your expectations, please note the following;

• Parking on site is limited to one spot per family. If you have multiple vehicles, please drop your belongings to the facility and park on Darley Rd. • Siblings and young children staying at the AYAH or visiting must always be supervised by parents or guardians. Staff are busy attending to patient needs and cannot be responsible for providing supervision or entertainment. Volunteers will support this when possible. • Friends of patients can also stay on site depending on accommodation availability. As part of our fire safety requirements, all family members should please sign in and out at the reception desk when leaving or returning to the AYAH. Nursing staff must also be informed of any visitors. • If you have a support animal you would like to bring for your stay, please discuss suitability with Clinical Nurse Specialist prior to admission.

• Patient rooms are on level 1, the upper level of the facility. Family rooms are on the ground level. Patients can spend time in the family rooms; however, we encourage patients to spend most of their time in the common areas or their allocated rooms where nursing staff and doctors can assist them if needed. Patients cannot sleep in the family rooms overnight and must sleep in their allocated patient room. • Family members and carers and companions can spend time in or stay in the patient rooms with patient or guardian consent. • Family accommodation can be requested and is provided at no cost. There are limited family room facilities, so these spaces will be allocated on a priority basis, dependent on patient conditions and family circumstances. • Bed linen and towels are provided, however please bring your personal belongings and toiletries.

Communicable Diseases For the safety of AYAH patients please note;

If a patient or family member planning a stay for respite experiences fever, vomiting, diarrhea, a positive Covid-19 or Influenza result prior to admission, please notify the Clinical Nurse Specialist. Due to the fragile health of our patients at the AYAH, it may be necessary to reschedule a respite visit. If a patient, family member or support person has been exposed to any of the below communicable diseases within 3 weeks of their stay, their stay may need to be rescheduled. • Chicken Pox • Measles • Tuberculosis • Whooping Cough • Mumps

Patient and Family Orientation Pack

Check in / check out timings Patient Check In Patient admissions must be on a weekday before 12:30pm. It is a NSW Health Policy requirement that all patients are reviewed by a doctor on admission. Family Check In Family suite check-in time; between 11am-1pm on the day of admission. Family suite check-out time; before 10am on pre- arranged departure day. Any alternative timing requests must be discussed with and approved by the Nurse Unit Manager before admission. Your family suite will be cleaned prior to your arrival. We ask that you keep the family room clean and tidy during your stay. It is the family’s responsibility to request clean linen and change linen in the family rooms. If you require clean linen, please ask at the reception desk. Please only use the beds required to prevent unnecessary laundry. Please do not leave any food or personal items in the room, we have waste facilities available for your use.

Housekeeping Our housekeeping staff work seven days a week. Cleaning supplies needed during your stay may be obtained from the housekeeping staff. In the event of spills or accidents, please let us know immediately so we can minimise the damage/risk to others. Please feel free to ask staff for assistance if you require extra linen, bedding or towels. Prior to your departure, please return family suite swipe cards to the nursing staff and ensure all clothing, toiletries, equipment, supplies and medications are safely packed and your room is cleared of all personal belongings. Please consider booking future respite visits with the Nursing Unit Manager/Clinical Nurse Specialist during your current stay.

Adolescent and Young Adult Hospice (AYAH)

Meals Meals are provided for patients, families and carers who are staying at the AYAH. If you plan to have visitors, please tell the Service Manager or the Chef and the team will do their best to accommodate additional meal requirements. Please share any dietary requirements or food allergy details with the Clinical Nurse Specialist prior to your admission. We encourage all patients, family members and carers to enjoy meals in the AYAH dining room. • Continental style breakfast: self-service from 7am. • Lunch: home style buffet from 12:30pm. • Dinner: home style buffet from 5:30pm. Snacks including tea/coffee, biscuits, juice, fresh fruit (seasonal), popcorn, savoury crackers, cheese, dried fruit and nuts, muesli bars, flavoured milk etc. are available in the dining room or Level 1 Lounge room as required.

We have a portable BBQ for outside use and encourage you to speak to kitchen staff to arrange access if you wish to use. Feel free to use the fridge that is in your room but be mindful of food expiring and dispose of such items appropriately using the bins provided. Please take any food you have brought with you upon discharge.

Patient Meal Support Only clinical staff, families or assigned carers can help feed patients during mealtimes. Volunteers and other staff will happily help gather utensils or a drink, but due to policy restrictions, cannot feed patients who require support.

Patient and Family Orientation Pack

Patient Gate Leave As a patient, if you wish to leave the AYAH for any reason, please let staff know. Your safety is our priority, and we like to have a plan in place before any outing. We may ask for the mobile number of someone accompanying you. As per our local policy, the length of leave cannot exceed 8 hours, unless discussed with your healthcare team. Free Patient/Guest WIFI Free WIFI is available through _NSW-Health_ Guest_Wifi_SUPERLOOP. Please join the COMPLIMENTARY link and fill in your personal details when prompted. Pets If you wish to bring your support animal to stay or for a visit, this will need to be discussed with and approved by the Clinical Nurse Specialist before your stay. We love our animal friends, but need to ensure they are suitable for all guests. Please be mindful that the bushland and national park surrounding the AYAH is known to have ticks. It is best to keep your pets away from the bushes.

Patients / family members / carers are responsible for support animals at all times. Please ensure that animals are always supervised and please bring appropriate bags with you to dispose of ‘droppings’ in the bin provided in the outdoor area.

Adolescent and Young Adult Hospice (AYAH)

AYAH policy information

Sharing a home-like environment We make every effort to create an environment that is ‘home- like’, and we trust that all families will be respectful of other families and the facility during their stay. To avoid noise complaints, it is best to vacate common areas by 10pm. TVs and devices can be used in allocated personal rooms. If using the downstairs Games Room, please remember to turn off equipment when you leave. Remote controllers should be put away and not left on the floor. Common areas should be kept clean and tidy. For example, put toys back in the appropriate place, return used dishes and cups to the kitchen and put away arts and crafts supplies etc. This is very much appreciated. Thank you for your co- operation and understanding. Safety and fire regulations

If you hear a fire or emergency alarm, please stay in your room and await instructions from nursing staff. If you detect fire or smoke in your room or anywhere within the facility, please alert nursing staff immediately. In the event of a need for evacuation please refer to the evacuation diagram on the back of the family unit door. Nursing staff and delegated fire wardens will support moving patients outside in a timely and safe manner. Please do not use the lift if there is a fire alert. Smoking/Vaping The AYAH is a smoke-free zone in accordance with Department of Health Guidelines. Smoking or e-cigarette use is permitted in designated smoking areas at the back of the building near the outdoor pergola. If you are not sure where it is, a member of staff can show you, however, they are not able to sit with you while you are smoking. We have NRT patches and inhalers for those who require them, but these must be prescribed by a doctor and administered by nursing staff. Vaping is NOT permitted inside rooms or on the grounds except for the designated smoking area. Please be mindful that the AYAH is surrounded by bushland. We ask that you use the available bins and ensure that your cigarettes are put out completely, so they do not pose a fire risk.

Alcohol (families/visitors) Responsible consumption of alcohol is permitted by adult guests only (see the alcohol guidelines for patients below). Please show respect for other guests. Disrespectful or offensive behaviour as a result of excessive alcohol consumption will not be tolerated. Staff have a responsibility to intervene and will do so, particularly if safety is compromised. Alcohol (patients) Patients over 18 can have 1 standard drink per day. Alcohol may be brought onto the premises, but it must be in a sealed bottle and given to nursing staff on arrival.

Patient and Family Orientation Pack

Cannabis Cannabis that is legally prescribed by an authorised prescriber is permitted. It must be given to nursing staff on admission, who will then administer it when required. The doctors at the AYAH will not initiate cannabis prescription, however it will continue it if it is already prescribed by another practitioner. Photo consent form If you are happy to feature in any social media post, marketing material or press opportunities to help promote the AYAHs service, please sign the Patient Consent Form that is available with this orientation pack. Compliments or complaints If you wish to make a compliment or lodge a complaint in relation to your stay, please ask to speak with the Nurse Unit Manager Manager or Service Manager

Social Media Please respect the privacy of staff and other patients and families at the AYAH. Please do not post images of AYAH staff members on social media accounts without permission. We ask that you respectfully refrain from connecting with staff members on any social media platform. If you would like to keep up to date with various events, patient experiences and activities at AYAH, you can do so via our Facebook and Instagram pages. Facebook: www.facebook.com/ayahmanly/ Instagram: www.instagram.com/ayahmanly/ Please do not post images of AYAH staff members, patients or family members

Adolescent and Young Adult Hospice (AYAH)

Facility information

Level 1: Accessed via lift or stairs Patient rooms, communal lounge and balcony, staff offices, staff bathrooms, patient bathroom, sensory room, multifaith room. Ground Level: Accessed via main building entrance Staff offices and meeting rooms, activity room, staff and facility bathrooms and change facilities, games room, music room, cafeteria and family rooms.

Patient and Family Orientation Pack

Outdoor Areas There are various communal outdoor areas that can be used by patients, family members and guests at any time. NatureFix NatureFix is designed to supercharge the wellbeing benefits of the natural places around Manly AYAH, enticing you to linger longer and engage with nature in ways proven to refresh and restore. How it works? Scan the QR code

to download the NartureFix app for free, visit our NatureFix wellness trail and start your uniquely personal nature experience.

NatureFix wellness zone locations are in the garden behind the Manly AYAH and the level 1 balcony.

Adolescent and Young Adult Hospice (AYAH)

Specialised services available

Therapies Prior to your admission, we

encourage you to think about the complimentary therapies you might like to access. These specialised staff do not work full-time, so it is preferable to give the team notice relating to your interests. You can also tell our friendly staff what services interest you on arrival. • Art Therapy • Music Therapy • Occupational Therapy • Physiotherapy • Speech Pathology • Dietitian • Social Work • Clinical Psychology • Grief and Bereavement counsellor Many memory-making activities such as fingerprint jewellery and heartbeat recordings can be arranged on request.

Spirituality and Religion You are welcome to use our multi-faith room located on Level 1. A visit from a member of Pastoral Care can be arranged for you, so please let a member of staff know and contact will be made on your behalf. The Pastoral Care Team at the AYAH is part of our Health Care service and can provide holistic care and support to you and your family and friends during your stay. This care includes your physical, emotional, social and spiritual wellbeing. Support for families The social and emotional consequences of supporting a young person who is ill can put all members of the family under a great deal of pressure. The AYAH recognises the stress a family may feel and the potential need to talk to someone during your stay with us. As a part of the support philosophy and environment of the AYAH, a social worker, clinical psychologist and grief counsellor are available to meet with you on a confidential and ongoing basis about any issues you or your family may be experiencing. Please let our friendly team know if you would like to utilise these services.

Patient and Family Orientation Pack

Welcoming visitors to the AYAH

When family and friends come to visit We welcome your visitors to the AYAH. All visitors are required to identify themselves by registering at reception. Please use discretion regarding the number of visitors and the times at which people come and go. If you wish to have large groups visiting, please inform staff prior to making arrangements.

We do not have strict visiting hours and understand that there may be circumstances in which visitors arrive after standard business hours. However, please liaise with the NUM or Nurse in Charge if visiting outside our regular hours of 8am to 8pm. As part of our fire safety requirements, all family members should please sign in and out at the reception desk when leaving or returning to the AYAH. Nursing staff must also be informed of any visitors.

We recognise your visitors may wish to have a look around the AYAH, however, please consider the privacy of other guests and consult with staff members before touring visitors. Tea and coffee are available for your use in the dining room on the Ground Floor and Lounge Room on Level 1.

Local sights, eateries, attractions and discounts

If you would like to learn more about the local area, including various attractions, sites and discounts offered by the community, please scan the QR code.

Transport Assistance Schemes for Rural families The Isolated Patients Travel and Accommodation Assistance Scheme (IPTAAS), provides financial assistance towards travel and accommodation costs when you need to travel more than 100km one way or 200km within a week, for appointments to the same medical practitioner or health service for specialised medical treatment that is not available locally.

IPTAAS provides financial support towards travel and accommodation. You can claim financial assistance towards: • Private vehicle travel • Public transport (trains, buses and ferries)

• Taxis (includes ride sharing like Uber) • Air travel (in special circumstances) • Accommodation

Your medical specialist will need to complete some sections of the form before you submit your claim.

Claim forms are available from AYAH reception desk, the social worker and you can download the form - www.health.nsw.gov.au/transport/Pages/iptaas.aspx

Adolescent and Young Adult Hospice (AYAH)

Carer support

As a carer visiting the AYAH we want to let you know that there are some wonderful resources you can access. The social worker can also assist you with this. Carer Gateway is a government funded service that aims to support carers in NSW- www.carergateway.gov.au What is Carer Gateway? Carer Gateway is an Australian Government program providing free services and support for carers. Carer Gateway provides many services to support carers in their caring role, including:

• In-person and online peer support groups - www.carergateway.gov.au/about/peer-support- groups • Tailored support packages to help with accessing planned respite, transport services, and more - www.carergateway.gov.au/tailored- support-packages • In-person and phone counselling - www.carergateway.gov.au/about/person-phone- counselling

• In-person and online self-guided coaching - coaching.carergateway.gov.au • Online skills courses to support your wellbeing and understanding of legal responsibilities

relating to the caring role - skills.carergateway.gov.au

• Access to emergency respite if you suddenly find you can’t provide care, for example if you become ill or injured - www.carergateway.gov.au/respite

Patient and Family Orientation Pack

Other Support Services for Carers Carers Australia www.carersaustralia.com.au

Carers NSW www.carersnsw.org.au

Services Australia www.servicesaustralia.gov.au/getting-support-if-youre-caring-for-someone

Resourcing Parents www.resourcingparents.nsw.gov.au

Emerging Minds emergingminds.com.au

NDIS www.ndis.gov.au

Mental Health Carer www.mentalhealthcarersnsw.org

Carers Connection Line - MHCN-Mental Heath Carers NSW (mentalhealthcarersnsw.org) T: 1300 554 660 (free call), or 02 9332 0700

Support for Young Carers New South Wales – Young Carers www.youngcarersnsw.org.au

The Young Carers Network youngcarersnetwork.com.au

Education Dept of NSW education.nsw.gov.au/student-wellbeing/attendance-behaviour-and-engagement/ behaviour-support-toolkit/support-for-parents/young-carers

Headspace headspace.org.au/services/parent-and-carer-events

Forms There are a number of forms that we require you to complete on admissions. Please ensure you have completed the following forms: • Admission form • AYAH diet and eating aid assessment • Photography consent form (if you would not like to provide consent for photography, please complete the form noting this)

Adolescent and Young Adult Hospice (AYAH)

Thank you for taking the time to read this information. Contact our friendly staff if you have questions to support your stay.

Notes

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Adolescent and Young Adult Hospice (AYAH)

Notes

Patient and Family Orientation Pack

Adolescent and Young Adult Hospice (AYAH)

150 Darley Road Manly NSW 2095

T: (02) 9926 5700 E: nslhd-ayahmanly@health.nsw.gov.au W: nslhd.health.nsw.gov.au/manly/Pages/default.aspx

MAY25/V1

Catalogue NS12888C-E

www.nslhd.health.nsw.gov.au

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