The Alliance 2022 Annual Impact Report

2022 ANNUAL REPORT

SAVING HEALING MORE LIVES & United in Purpose

CRITICAL ISSUES EVENTS The Alliance National Critical Issues Forums convene current & emerging leaders from across the community of practice for collaborative discussions identifying strategies to increase organ donation and transplantation.

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TABLE OF CONTENTS Message from the Directors 4 - 5 Vision, Mission, Value 4 The Strategic Plan 6 - 7 Connect with Purpose 6 Strategic Planning Committee 6 Goals for the Future 7 Four Strategic Pillars 6-7 What’s New 7 Strategic Pillar I: Community Collaboration 8-21 Implementing Design Thinking for Collaboration 9-10 Council Initiatives 11 National Donation Leadership Council 12 National Innovation Leadership Council 13 National Transplant Leadership Council 14 Partnering with Purpose 15-16 Count on Us: SRTR Partnership 16 Quality and Process Improvement for Americans with ESRD 16 2022 National Critical Issues Forum 17-19 The NASEM Report 20-21 Strategic Pillar II: Innovation Sharing 22 - 35 Learning Strategies 23-24 Advancement Learning Series 25 Conversation Series 26 The Alliance: By the Numbers 27 Improving Health Inequities 28-29 Executive Insight Series & Spotlight Series 30 Driving Growth in DCD 31 Foundational Perspectives of Organ Donation 32 OnboardingU & Saving & Healing Lives Video 33 The Alliance Job Board 33 A Mentorship Made in Heaven & Mentorship Financial Patrons 34-35 Strategic Pillar III: Enhanced Learning Experience 36-39 Personalized Pathways 37 Continuing Education Credits 38 New Edition of Organ Donation Textbook & e-Book 39 Strategic Pillar IV: Sustainable Infrastructure 40-55 Evolving Needs of the Community of Practice 41 The Alliance: Engagement By the Numbers 42 2023 National Pediatric Donation & Transplantation Summit 43 The Alliance Board of Directors 44-45 The Alliance 2022 Leadership Award Recipients 46-47 2022 Professional Partner Organizations 48-49 2022 Corporate Partner Organizations 50 Staff, Faculty, Committees, Workgroups 51 - 53 2023 Professional Partnership Levels of Support 54 - 55 PROFILES 12 Rondi Gelbard, MD 13 Yvette Chapman 14 Randall Sung, MD 15 John Magee, MD 26 Jon Snyder, PhD 29 Remonia Chapman 35 Michelle Reef 38 Galen Henderson, MD 42 Paul Myoung 43 Tom Nakagawa, MD 45 Ana Hands, MD

Our vision

The Organ Donation and Transplantation Alliance activates the “All Teach, All Learn” approach by exchanging collective expertise across the healthcare continuum and by developing relevant, targeted and scalable learning solutions, on a bold pursuit to save and heal lives. cascade innovations and share effective practices for the benefit of restoring lives through transplantation. Our value The Alliance unites the organ donation, transplantation and healthcare community to promote collaboration, Our mission To be the catalyst that ignites bold advancements in organ donation, transplantation and overall patient survival through collaboration and engaged learning.

A MESSAGE FROM OUR DIRECTORS

United in Purpose Amidst current change, our community remains resolute to our collective mission: Saving and Healing Lives.

facilitate these varied perspectives. In 2022, the Alliance aligned our many learning opportunities with a clear strategic portfolio to meet the demands of team members. We have deliberately designed a comprehensive model that is interdisciplinary in nature. The learning experiences provide personalized knowledge that professionals can immediately put into practice. The varying levels of interactivity and convenience provide organ donation and transplantation professionals with opportunities to increase their knowledge and skills and interact with experts in ways that work for them. Today, we welcome your new ideas and innovative approaches. Every day we are creating forums for shared expertise, exchanging new effective practices, and advancing our network of leaders. In the midst of such challenging times, we are pleased to report the collective progress we have made to advance the field. The theme of our 2022 Annual Impact Report is “United in Purpose” to highlight our shared urgency to advance our community of practice and honor the gift of life. We encourage you to take a moment to view the refined strategy map which shares our vision for greater impact in the future. The sections of this report highlight our strategic pillars: Community Collaboration, Innovation Sharing, Enhanced Educational Platform and Sustainable Infrastructure. Each highlights the specific programs and leaders that are bringing the strategy to life. As we continue to charge through this era of disruption and growth, we are very fortunate for the voluntary financial support provided by our professional and corporate partners who support our mission and the many initiatives underway. We invite you to join as a 2023 Professional Partner. With your support, we will continue to raise up our community to identify the emerging issues, to build the valuable resources to implement effective practices, and to execute on practices that advance our profession. We welcome 2023 as we are all united in purpose.

Clinical Innovation. Regulatory Change. Staffing Challenges. COVID-19 Impact. Legislative Involvement. New Professionals and New Ideas.

We are currently at a pinnacle of change in many aspects of our field. Several of these disruptions were unplanned and unforeseen. Yet, amidst all of this change, our community remains resolute to our collective purpose: Saving and Healing Lives. The Alliance was founded on the critical need to collaborate across the healthcare continuum. Our structure involves partners representing a variety of important organizations and critical perspectives. We celebrate the balanced representation of OPOs and Transplant Centers in addition to individuals representing ACHE, AHA, AOPO, AST, ASTS, SCCM, The Joint Commission and UNOS. Across the board, each individual is passionate about our collective mission. There is an underlying drive among our colleagues to serve the strongest donation and transplantation system in the world - and make it stronger day by day. As challenges mounted and changes became permanent, our community continued to keep the support for donors and care for patients paramount. We have intentionally chosen to approach challenges directly, by sharing insights across the nation. It is now more critical than ever to navigate the opportunities together. Hundreds of volunteers engage with The Alliance. They do not receive payment or other financial benefits for their time and knowledge. They are driven by their desire to improve our field for our waitlist patients to receive life-saving transplants. We thank our volunteers immensely and work to ensure their time is not wasted. As we look forward, Design Thinking is an approach that many fields, including healthcare, have used to drive innovation. As our collaboration continues to evolve across the continuum, we plan to explore new Design Thinking techniques to

ANA HANDS, MD Vice President, Transplant Services Ochsner Health Board Chair, The Alliance

KARRI HOBSON-PAPE, MBA Executive Director, The Alliance

2022 ANNUAL REPORT

OUR STRATEGIC PLAN

Strategic Planning Committee ANA HANDS, MD Alliance Board Chair | Vice President, Transplant Services, Ochsner Health JAN FINN Alliance Board Chair-Elect | President & CEO, Midwest Transplant Network NANCY FOSTER Vice President of Quality and Patient Safety Policy, American Hospital Association DAVID KLASSEN, MD Chief Medical Officer, United Network for Organ Sharing (UNOS) JOHN MAGEE, MD Jeremiah & Claire Turcotte Professor of Transplant Surgery, University of Michigan KEVIN MYER Alliance Board Immediate Past Chair President & CEO, LifeGift PAUL MYOUNG Senior Administrative Director, Massachusetts General Hospital THOMAS NAKAGAWA, MD Professor of Pediatrics, University of Florida College of Medicine – Jacksonville JENNIFER PRINZ President and CEO, Donor Alliance JON SNYDER, PHD Board Treasurer and Director of Transplant Epidemiology, Hennepin Healthcare Research Institute SUSAN STUART President & CEO, Center for Organ Recovery & Education (CORE) Our Four Strategic Pillars

Connect with Purpose Building a collaboration and engaged learning platform for the future of health care

The Alliance completed its 2022 – 2025 strategic plan that will continue to guide its vision to be a catalyst that ignites bold advancements in organ donation, transplantation and patient survival through collaboration and engaged learning. The plan built upon the framework established in 2021 to emphasize community collaboration, innovation sharing, enhanced learning experiences and sustainable infrastructure. The planning process was supported by The Joint Commission. Eleven Alliance board members served on the strategic planning committee, which was led by Board Chair Dr. Ana Hands, vice president of transplant services for Oschner Multi-Organ

Transplant Institute. “In this age of disruption, we feel it is essential to review the current scope of work conducted by The Alliance and evaluate plans to optimize the investments made, based on feedback from the community of practice,” says Hands. “And, we deeply value the consultative involvement of one of our key partners, The Joint Commission, to guide the planning process.” For the second year in a row, Yerachmiel “Rocky” Ephraim, a Lean Six Sigma expert at The Joint Commission, was loaned to lead the work of the Strategic Planning Committee. At The Joint Commission, he works closely with senior leadership and staff on a variety of projects.

2022 ANNUAL REPORT

OUR STRATEGIC PLAN Cross-cutting Goals for the Future What’s

What’s New

1 2 3 4 5 6 7 8

Several new learning programs, improved connections for professionals across the continuum, and continued investment in an effective learning portfolio will be introduced in the 18 months. A few of the new programs and tactics include:

Reinforce the connections among our three domains in organ transplantation - hospitals where donations occur, organ procurement organizations and transplant programs Enhance collaborative leadership opportunities to improve donation and transplantation practices Improve access to current tools, resources and learning programs for broad consumption Deliver valued contextual perspective and interdisciplinary view across the organ donation and transplantation continuum.

Drive innovation and solutions to address the challenges that exist today

National Critical Issues “One-Day” Events, based on specific key topics areas.

Enhance depth of community partnerships with supporting associations and government organizations, while maintaining an objective and balanced perspective

Advance diversity and inclusion across all Alliance efforts

Increase awareness about collaborative initiatives and learning solutions provided by The Alliance to a broader audience

National Pediatric Donation and Transplantation Summit in 2023

MISSION-DRIVEN STRATEGIC PILLAR III ENHANCED LEARNING EXPERIENCES Cascade knowledge through improved access and a comprehensive learning experience for the ODT community MISSION-DRIVEN STRATEGIC PILLAR II INNOVATION SHARING Provide effective practices, emerging ideas, innovative approaches and interdisciplinary perspective through engaged learning solutions MISSION-DRIVEN STRATEGIC PILLAR I COMMUNITY COLLABORATION Drive community collaboration for greater sharing among thought leaders in the field MISSION-ENABLING STRATEGIC PILLAR IV SUSTAINABLE INFRASTRUCTURE Build infrastructure for long-term sustainable success

Development of On-Demand Learning Pathways for a wide variety of topics

Redesign of the OnboardingU Foundational Perspectives of Transplantation Program

Introduction of text messaging as a new communications tool for those who prefer texts.

Pioneers of Possible – highlights of the great innovators in donation and transplantation

2022 ANNUAL REPORT

ENGAGING WITH PURPOSE

Radical COLLABORATION Complex issues currently facing organ donation and transplantation include regulatory shifts, Intentional structure and team exercises drive collaborative outcomes

Design Thinking is Human Centered

“The design thinking step of empathy—of being human and patient centered––to discover and understand the real needs of patients and their families, of staff members, of physicians and of regulators could be key as our Councils and workgroups develop best practices,” says Deanna Fenton, Alliance Senior Director of Educational Program Development and Operations. Wicked Problems The term “wicked problem” was first coined by Horst Rittel, who wrote extensively about problem-solving in design, to describe problems which are multidimensional and extremely complex. Wicked problems are problems with many interdependent factors making them seem impossible to solve. Because the factors are often incomplete, in flux, and difficult to define, solving wicked problems requires a deep CONTINUED on pg. 10

economic challenges, staffing pressures, and the need to incorporate novel technical innovations into existing practices. The Organ Donation and Transplantation Alliance (The Alliance), with its existing strong foundation of collaborative practices, is exploring the addition of design thinking principles that in concert with ‘radical collaboration’ practices can improve the exchange of collective expertise across the healthcare continuum to address these and other issues. The Alliance was created to convene all three areas of the transplantation continuum to find solutions and to drive continuous change. This unique position brings together important perspectives from donation to transplantation to better understand barriers and opportunities that are not easily identified within one domain. “In an age with tremendous disruption, collaboration will be the key to find solutions to the ‘wicked problems’ that face us collectively,” says Alliance Executive Director Karri Hobson-Pape. Collaboration is so key, in fact, that a situational analysis conducted as part of The Alliance’s 2021 Strategic Planning process resulted in Community Collaboration becoming one of The Alliance’s three strategic pillars with a related strategic plan goal to “enhance collaborative leadership opportunities to improve donation and transplantation practices.” The Alliance continuously examines practices in other fields – in healthcare and outside of healthcare – to evaluate and improve current approaches to collaboration. Applying the model of design thinking to the field of transplantation provides an opportunity to enhance innovation and effectiveness through an increased focus on patient and provider needs.

Developed over the last several decades, design thinking is a tool for innovation that can be used when organizations and industries face a great need for fresh approaches. This approach is focused on a human-centered problem-solving method that promotes ethnography, empathy and iterative solutions influenced by testing. Building upon psychological studies in the 1940s, design thinking began to flourish in management in the 1990s. Led by several academics at Stanford University, the model was applied widely in technology and social innovation fields, continuing with the shift from creative engineering to innovation management in the 2000s. According to a 2018 CDC report, there is much enthusiasm for the use of design thinking in health care from intervention development to large-scale organizational and system changes. Earlier this year, The Alliance invited Amy Zehfuss, founder of Springboard Strategy, to give a presentation on design thinking to The Alliance staff. “Design thinking fits in well with The Alliance given our focus on collaboration to drive innovation,” says Hobson-Pape. The Alliance’s existing focus on collaboration provides

a jumping-off point for adopting certain aspects of the design thinking process, including the emphasize/insight gathering, the define/find a problem worth solving, and the ideate/brainstorm solutions steps.

RADICAL COLLABORATION from pg. 9

“The Alliance lends itself well to radical collaboration as we bring together people from different domains, different roles in their organizations, and different parts of the country to address problems,” says Fenton. We offer a neutral platform for multiple stakeholders to have critical conversations.” As best practices are identified through collaborative sessions, they are then cascaded throughout The Alliance’s portfolio of learning programs. This facilitates the testing of new opportunities quickly across the nation. “Once new opportunities and solutions are identified in work groups, we can then cascade the information through our educational resources so people can apply and test these areas of innovation in their units, practices and centers,” says Fenton. Driving Community Collaboration is an Alliance Strategic Goal The Alliance is structured with governance and input from all members of the healthcare continuum as it relates to organ donation and transplantation and efforts to enhance that collaboration were informed by a situational analysis that was conducted as part of The Alliance’s 2021 Strategic Planning process. The analysis resulted in a strategic plan goal: “Enhance collaborative leadership opportunities to improve donation and transplantation practices.” Resources to Learn More Stanford D-School Resources https://dschool.stanford.edu/resources Creative Confidence , by Tom Kelley and David Kelley Change by Design , by Tim Brown The Ten Faces of Innovation , by Tom Kelley On Design Thinking , by Tim Brown 2018 CDC Report https://www.cdc.gov/pcd/issues/2018/18_0128.htm “ A design thinking framework for healthcare management and innovation, ” by Jess P Roberts, Thomas R Risher, Matthew J. Trowbridge, Christine Bent

understanding of the stakeholders involved, effective collaboration, and an innovative approach provided by design thinking. The many complex issues faced in transplantation – from organ transport logistics to opportunities with marginal organs – can be framed as “wicked problems” in the landscape of design thinking. “We have some wicked problems,” says Hobson-Pape. “Adding some elements of the design thinking process to our existing use of radical collaboration could accelerate the innovations that our Councils and work groups develop.” Another example of a wicked problem in transplantation is Donation after Circulatory Death (DCD). The Alliance’s National Donation Leadership Council determined that a guide was needed to increase the number of DCD organs available for transplantation and to highlight best practices around the country. A number of organizations provided volunteer professionals to contribute to the guide including the American Society of Transplantation (AST), Association of Organ Procurement Organizations (AOPO), American Society of Anesthesiologists (ASA), Association for Surgery of Trauma (AAST), Donate Life America, Neurocritical Care Society, and several organ procurement organizations. The Alliance coordinated the work of this interdisciplinary group of volunteer health- care experts to create the first-of-its-kind comprehensive guide to Donation after Circulatory Death, The Alliance DCD Educational Resource Guide for hospital patient care teams. The Radical Collaboration Approach The Alliance’s vision “To be the catalyst that ignites bold advancements in organ donation, transplantation and overall patient survival through collaboration and engaged learning” begins with the premise of community collaboration. Radical collaboration is based on a key principle from design thinking and is inspired by the desire to learn from, offer and embrace diverse perspectives within the processes of problem-scoping, idea generation, solutions finding, and innovation. By structuring groups around the principle of linking broad areas of expertise rather than a hierarchical ranking, radically collaborative organizations favor networks of dynamic, self-managing teams. These are grounded in partnership and equality and feature a fluid approach to leadership granted by trust. Taken together, these facets of radical collaboration paint a striking alternative to the traditional corporate hospital model.

343 NUMBER OF

VOLUNTEERS ON THE BOARD, COUNCILS & WORKGROUPS

INCREASE SINCE 2020

2022 ANNUAL REPORT

2022 National Donation Leadership Council Community Collaboration The Alliance is proud to host three national leadership councils, composed of representatives from diverse disciplines and levels of leadership across the donation and transplantation continuum. Together, they give of their time and expertise to equip a modern profession of lifesavers through the development of scalable, targeted solutions for the community of practice. STRATEGIC PILLAR I BOARD OF DIRECTORS STRATEGIC PLANNING Set Strategic Priorities to Drive Resource Development • National Donor Management Summit • Community Resource Toolbox • Foundational Perspectives of Organ Donation • Community Hospital Resource Guide • Hospital Executive Insights • Advancement Learning Series — Donation Focused • DCD Educational Guide • National Pediatric Summit • First Person Authorization Initiative • Universal Donor Management Guidelines Initiative CURRENT PROGRAMS & INITIATIVES INITIATIVES IN DEVELOPMENT Established prior to 2021 2021+

• Transplant Resource Guide & Tools • Onboarding U: Foundational Perspectives of Transplantation • Transplant Executive Insights • Conversation Series • Advancement Learning Series — Transplant Focused

• Transplant Quality Metrics Initiative • Allocation, Distribution, and Organ Recovery Resource • Cross-Communication Platform (Enhancing OPO/Transplant Partnerships)

2022 National Transplant Leadership Council

• Advancement Learning Series — Innovation Focused • The Alliance Mentorship Program • National Critical Issues Forum

• Regenerative Medicine, Preservation Techniques & Medical Devices • Emerging Research Initiative • Automated Referrals Implementation Guide

2022 National Innovation Leadership Council

2022 ANNUAL REPORT

DONATION 2022 National Donation Leadership Council Members DAN LEBOVITZ, MD (CHAIR) Pediatric Intensivist

STRATEGIC PILLAR I: COMMUNITY COLLABORATION

Akron Children’s Hospital LifeCenter Northwest

DOMINIC ADORNO (CHAIR ELECT)

Vice President Clinical Operations Associate Professor of Surgery

RONDI GELBARD MD, FACS

UAB Hospital

KATIE MCKEE

Dir., Hospital Services & Donor Family Aftercare Trauma/Acute Care Surgery, Surgical Critical Care Medical Director, Referral Management Sr. Director, Education and Development Director, Transplant Ethics & Policy Research Sr. Associate Director, Surgical Critical Care President & Chief Executive Officer, Board Liaison Director, Transplant Coordinator Services Director, Hospital & Partner Relations Pediatric Critical Care Medicine Intensivist

LifeSource

FADY NASRALLAH, MD

Scripps Memorial Hospital La Jolla

ROSEMARY O’MEEGHAN, MBBS

OneLegacy

ROBIN OHKAGAWA, BA, BSN, RN, CPTC

New England Donor Services

BRENDAN PARENT, JD

NYU Langone Health Hartford Hospital

JUDITH PEPE, MD

JENNIFER PRINZ, RN, MPH, CPTC, CTBS

Donor Alliance

CHRISTINE RADOLOVIC

Gift of Life Donor Program

MICHELLE REEF

Gift of Hope Organ & Tissue Donor Network

SOPHIA SMITH, MD

Children’s National Hospital

DONNA SMITH

Senior Director Clinical Services

Sierra Donor Services

EMILY VAIL, MD, MSC

Asst. Professor, Anesthesiology & Critical Care

Perelman School of Medicine, Univ. of PA

SCHAWNTÉ WILLIAMS-TAYLOR, MBA, MSML, RN, CCRN-K, CPTC

Vice President, Family Engagement

LifeGift

and Donation Services

2022 NATIONAL DONATION LEADERSHIP COUNCIL

opportunity to create a document that would really explain every aspect of DCD, demystify it, raise awareness and give people a better understanding of what it entails.” She joined UAB in 2019 from Emory University School of Medicine where she spent six years as a trauma/acute care surgeon and critical care intensivist in the Emory Division of Surgery at Grady Memorial Hospital. From 2017-2019 she was the Medical Director of the Surgical ICU at Grady Memorial Hospital, which is one of the busiest Level I trauma centers in the country. Her involvement with organ donation and transplantation came about early in her career in trauma. “My interest actually started back at Grady when I was a brand-new attending and was going through the process of brain death evaluation for a patient,” says Dr. Gelbard. “I realized there were ways that we could improve our process. At that time, we used two brain death exams. I did some research and found that it was sufficient to do one exam, and thought perhaps we could improve overall

the same; that they don’t have any chance of a meaningful recovery.” “But they do have a chance to save other people’s lives.” “That really has impacted me throughout my career. If I can do something to increase the number of lives saved, despite one person’s life that’s been lost, it gives families hope and a sense of purpose and meaning and may help them come to terms with what is otherwise a horrible experience.” Dr. Gelbard is a member of the Organ Donation and Transplantation Alliance National Donation Leadership Council. She serves on the Donation after Circulatory Death (DCD) Educational Resource Guide workgroup and has been very involved in the Foundational Perspectives of Organ Donation (formerly the Exploratory Seminar) course. She’s part of The Alliance’s workgroup that is creating the first comprehensive DCD Educational Guide for hospitals, providers, and organ procurement organizations (OPOs). “In terms of organ donor management and how we can increase potential donors, there’s still a lot of uncertainty and lack of understanding about the process and not everyone is comfortable with it,” she says. “This was an

RONDI GELBARD, MD

Rondi Gelbard, MD, associate professor of surgery, chief of critical care services, and medical director of the trauma/burn ICU at the University of Alabama at Birmingham (UAB) Hospital, says she’ll never get used to delivering bad news to families but giving them hope and purpose through the opportunity of organ donation is what drives her. “Unfortunately, in my line of work we see patients of all ages,” she says. “They suffer devastating injuries, often very unexpectedly. We have to explain to the families who saw their loved one walking and talking that morning that their family member will never be Hope That Donation Can Provide Drives Trauma Surgeon

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2022 ANNUAL REPORT

INNOVATION 2022 National Innovation Leadership Council Members GINA DUNNE SMITH (CHAIR) Executive Director YVETTE CHAPMAN, BSN, CCTC (CHAIR ELECT) Vice President, Business Partner Development

IIAM (Intl. Inst. for the Advancement of Med.)

Southwest Transplant Alliance

DAVID AXELROD, MD, MBA ADAM BINGAMAN, MD

Transplant and Hepatobiliary Surgeon

University of Iowa Hospital and Clinics Methodist Speciality and Transplant Hospital GIft of Hope Organ & Tissue Donor Network

National Medical Director Retired Chief Executive Officer

KEVIN CMUNT

BARRY FRIEDMAN MARK HOBEIKA, MD

Executive Director

AdventHealth Transplant Institute

Assistant Professor of Surgery

Houston Methodist Hospital

MACEY LEVAN, JD, PHD GEORGE MAZARIEGOS, MD

Assoc. Prof. of Surgery and Population Health

NYU Grossman School of Medicine UPMC Children’s Hospital of Pittsburgh

Professor of Surgery

BHARGAV MISTRY, MD

Director, Transplant Services

Sanford Heatlh

MARIA MOLINA, MSN, CRNP

Heart Transplant Nurse Practitioner

Perelman School of Medicine, Univ. of PA

JENNIFER MURIETT, MSN, BSN, CPTC JEROME SALTARRELLI, JR., PHD, F(ACHI)

Chief Operating Officer

Donor Alliance

HLA Lab Director

Univ. of Texas McGovern Medical School

DALTON SHAULL

Chief Executive Officer

OmniLife

JANICE WHALEY, MPH, CPTC, CTBS

President & Chief Executive Officer

Donor Network West

SCOTT WUNSCH

Chief Operating Officer

Trinity Medical Solutions

2022 NATIONAL INNOVATION LEADERSHIP COUNCIL

“I’m finalizing the details on how to cast that wider net for our hospitals, how do we say in the face of terminal, irreversible death so we don’t miss those donors who might be able to decide for themselves to become organ donors because there’s true potential.” Chapman says she was connected with the innovation side of donation and transplantation several years ago when she was the director of Transplant Center Development at STA and led a year-long project that resulted in the creation of an Organ Utilization Tool (OUT) that the United Network for Organ Sharing (UNOS) has offered to OPOs since 2017. OUT visually illustrates the characteristics and outcomes of organs that local transplant centers turned down that were transplanted elsewhere. “We were increasingly year-over-year having more organs available for transplant and transplanting more organs, but not as many that were staying in our service area,” says Chapman. “More of them were going outside of the service area, not as a result of allocation, but as a result of our transplant centers turning them down for quality and other reasons, but other transplant programs were accepting them. My first job was to get in and understand what were their reasons.”

Chapman met with STA’s transplant centers. “Every one of them said, ‘Our experience has told us that these organs are not utilized, but you’re telling us they’re being utilized elsewhere. Can you come up with a way to show us the outcomes of those organs?’” Over the next year, Chapman met with medical directors and surgical directors at 10 transplant centers with 29 transplant programs–heart, liver, kidney, lung, and pancreas– and asked what elements they wanted to see. She then partnered with Meg Rogers, director of Transplant Center Relations at LifeSource, the OPO in Minneapolis, to create the tool. “The tool would not be what it is without all of that cross-collaboration,“ says Chapman. “I couldn’t have even dreamed that I knew what was the right level of information for the Transplant Centers. And they had no idea what information the OPOs had access to provide and that we were willing to make changes. Without having that exchange, there’s no possible way for innovative changes to occur.

Seeing potential for avoiding missed opportunities in the referral process for organ donors is an example of an innovation that Yvette Chapman, chair-elect of the National Innovation Leadership Council of the Organ Donation and Transplantation Alliance, is known for in her career as a transplant nurse, transplant coordinator and now as vice president of business partner development at Southwest Transplant Alliance (STA) in Dallas. STA is one of 57 organ procurement organizations (OPOs) in the U.S. and serves 10 hospital transplant centers and 270 hospitals in 89 Texas counties and one in Arkansas. YVETTE CHAPMAN, BSN, CCTC Opportunities for Improvement Drives Innovative Spirit

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2022 ANNUAL REPORT

TRANSPLANT

STRATEGIC PILLAR I: COMMUNITY COLLABORATION

2022 National Transplant Leadership Council Members RANDALL SUNG, MD (CHAIR) Associate Professor of Surgery

Michigan Medicine UC San Diego Health

TAMRA MAGEE (CHAIR ELECT) JOANN BROOKS, RN, BS, MSN

Director, Center for Transplantation

Nursing Supervisor, Liver, Lung and Procurement University of Michigan Transplant Center

LEIGH ANN BURGESS ERIKA DUDLEY, BSN

Senior Administrative Director Director, Transplant Services

Methodist Healthcare

Children’s Hospital of Michigan

ROBERT HARLAND, MD, FACS SUSAN MANDELL, MD, PHD

Surgical Director, Solid Organ Transplantation

University of Arizona

Professor of Anesthesiology

University of Colorado School of Medicine

KRISTIN MEKEEL, MD

Chief of the Division of Transplantation

UC San Diego Health

PAUL MYOUNG, MHA, FACHE

Senior Administrative Director

Massachusetts General Hospital

Board Liaison

KIMBERLY RALLIS, BS, MHA

Executive Director, Trager Transplant Center

UofL Health - Jewish Hospital Rush University Medical Center

LJILJANA SAPONJA

Transplant Program Coordinator

JASON SAUDE

Clinical Manager

UC San Diego Health

LINDSAY SMITH, RN, MSN ERIN WELLS, RN, BSN, CCTC CHRISTOPHER WOOD, MBA

Transplant Quality Director

Vanderbilt Transplant Center

Clinical Director, Hepatology & Liver Transplant

Loma Linda University Medical Center

Director, Operations

UPMC Transplantation Services

2022 NATIONAL TRANSPLANT LEADERSHIP COUNCIL

with The Alliance. “The idea was to build bridges between the Organ Procurement Organization (OPO) community and the transplant community,” says Sung. “We look to create and develop content since a big part of what The Alliance does is create educational opportunities and networking opportunities to bring people together. The Council works to create content that’s of interest for transplant center professionals across the spectrum, from physicians to nurses to administrators and everyone in between.” “One of the things that we keep in mind when we’re developing content is that we want to create added value for the transplant and OPO communities. We look to fill a knowledge need that isn’t being addressed by other groups or professional organizations. We work to connect in a synergistic fashion with the work of other groups.” The National Leadership Transplant Council currently has three areas of focus. “We’re looking at how to adapt to changes in allocation and broader geographic sharing, transplant quality metrics, and enhancing and maximizing OPO and transplant center communication.” Sung received his undergraduate degree in

biochemistry from Harvard in 1985 and took a couple of years off to travel and work in a lab before going to medical school at Columbia University College of Physicians and Surgeons. He then went on to a general surgery residency at Columbia where he had planned to pursue pediatric surgery. Before his research year, he switched gears and became a research fellow in the lab of Mark Hardy, where he became trained in islet isolation, pancreas procurement, and in rodent models of islet transplantation. “I had had one rotation in kidney transplant and liked it quite a bit,” says Sung. “I liked the medical aspects of it, the continuity, the fact that you develop relationships with patients in a way that wasn’t always present with other surgical procedures. Once I was working in the lab and doing my animal research project, I got involved in other clinical projects, including learning how to isolate human islets. We also went out to do organ procurements to recover the pancreas, and that piqued my interest in transplant further.”

RANDALL SUNG, MD

Identifying emerging issues in organ transplantation and developing added-value programs that are relevant to organ transplant centers is the focus of Dr. Randall Sung, professor of surgery and surgical director of kidney and pancreas transplantation at the University of Michigan, in his work as chair of the Organ Donation and Transplantation Alliance National Transplant Leadership Council. Sung has served on the Transplant Council since it started as a task force in 2012 to better connect the transplant community Focusing on Creating Added-Value Programs for Transplant Centers

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2022 ANNUAL REPORT

Partnering with Purpose Opportunity to Learn from ‘Other Voices’ Drives the University of Michigan Professional Partnership with The Alliance STRATEGIC PILLAR I: COMMUNITY COLLABORATION

Opportunities to learn from a diverse group of professionals across the organ donation and transplantation continuum and access to a portfolio of educational content and effective practice resources are key drivers for the University of Michigan Transplant Center to be a Platinum Circle Partner for The Organ Donation and Transplantation Alliance (The Alliance). “The thing that I really like about The Alliance is that it provides an opportunity for everyone who gets involved to learn from a diverse group of people,” says Dr. John Magee, section head of transplant surgery at the University of Michigan Transplant Center. “By being the convener of a variety of experts in transplantation and health care, The Alliance provides an interdisciplinary perspective that is not all that common. Many of us have a strong partnership with our local Organ Procurement Organization (OPO), but you don’t necessarily hear the voices of other people around the country.”

“Hearing the same problems from different people and other solutions to challenges is really good in transplantation,” he adds. “Rather than being a local echo chamber between the staff within your center and your local OPO, The Alliance widens the voices and the knowledge and expertise.” The Alliance is supported by voluntary financial support from professional and corporate partners and the Michigan Transplant Center is one of 28 Platinum Circle Partners. Professional partners work with the Alliance to advance the organ donation and transplantation field and each other.

“We appreciate the support of all our partners, both professional and corporate,” says Karri Hobson Pape, Executive Director of The Alliance. “We appreciate the support of all our partners, both professional and

CONTINUED on pg. 16

2022 BOARD OF DIRECTORS, ASTS REPRESENTATIVE

Dr. Magee rowed in high school and college. “Rowing is a big part of my approach to life,” he says. “I liked the challenge of rowing and the dedication, intensity, and purity of it. I’ve had the opportunity of both rowing in big boats, which are eight-man boats, and in singles and doubles. It’s a mix of individuality and teamwork and the interconnection of those two is a big part of rowing.” He is the oldest of three children and grew up outside Philadelphia where his father was in internal medicine. He knew early on that he wanted to be a doctor. “I recognize that one of my biggest privileges has always been knowing what I wanted to do and having had the opportunity to do it. PATH TO TRANSPLANTATION He received his undergraduate degree from the University of Pennsylvania and his medical degree from Jefferson Medical College in Philadelphia where he was first exposed to transplantation. “I thought it was a unique application of medicine,” says Dr. Magee. ”It was solving problems using data at hand.

make something better. “There’s nothing worse than a squandered opportunity or not taking full advantage of everything you have,” he says. “Those gifts can include both your own talents as well as the talents of those around you.” Dr. Magee is known for taking full advantage of opportunities to develop himself and others. He is the Jeremiah and Claire Turcotte Professor and head of the section of transplantation in the UM Department of Surgery, professor of Internal Medicine and Pediatrics, and the surgical director for Pediatric Abdominal Transplantation. He performs kidney, pancreas and liver transplants and is a nationally known transplant leader. He is active in the American Society of Transplant Surgeons (ASTS), the National Kidney Foundation of Michigan, and the Organ Donation and Transplantation Alliance (The Alliance). Dr. Magee has been on The Alliance’s board of directors since 2011 and served as chair from 2017-19. He began his service on the Leadership and Innovation Council, which he later chaired, and most recently he has served on planning committees for the National Critical Issues Forum. This year’s forum, “Optimizing Performance in an Age of Disruption” was held September 15-16 in Orlando.

JOHN MAGEE, MD

Driven by Seizing Opportunities to Move Forward

Having spent a significant period of his youth as a rower, Dr. John Magee, section head of transplant surgery at the University of Michigan (UM), is happiest when he’s part of a team. “Being part of a team that works well and is about doing the right thing is exciting,” he says. “I was happy in the middle of the boat, in the back of the boat, or in the front of the boat – as long as the boat was moving forward.” He sees rowing as being analogous to organ transplantation teams where there are many different roles to be played in what he calls the most interdisciplinary area of medicine. But his pet peeve is wasting opportunities to

To continue reading Dr. Magee’s full profile, scan this QR code.

2022 ANNUAL REPORT

STRATEGIC PILLAR I: COMMUNITY COLLABORATION

PARTNERING WITH A PURPOSE from pg. 15

“We really value those relationships, and our team has benefited greatly from the educational content.” Dr. Sung chairs The Alliance’s National Transplant Leadership Council. “The Alliance provides a framework for hearing some of the different voices in transplantation that are not just from your program,” says Dr. Magee. “Hearing other voices is good.”

“Their support enables The Alliance to continue to turn discoveries into solutions for the organ donation and transplantation community. The University of Michigan Transplant Center has been a huge contributor of volunteer expertise to The Alliance and Dr. Magee has been instrumental in encouraging his team members to be involved.” Dr. Magee said Michigan team members, including physicians, surgeons, nurses, and staff, have been involved with The Alliance. They have served on National Leadership Councils, and participated in the Mentorship program. “Most of the people that have been involved from our program are the people who see a great opportunity and take advantage of it,” he says. “I’ve always been supportive of their involvement, but I’ve never actually had to push anyone towards it. The people that that have taken advantage of it recognize it as something that’s important and valuable and they do it. That’s a great thing because as a leader within a program, you realize that people that you have working for you are also interested in making the world better. It’s very reassuring and a source of pride that so many Michigan people want to be involved and participate in The Alliance.” Randy Sung, professor of surgery and surgical director of Kidney and Pancreas Transplantation at the University of Michigan concurs about the value of The Alliance. “Our organization has always been highly supportive of The Alliance, both in terms of service and in financial support,” he says. Continuously improving operations is guided by thoughtful analysis of performance metrics. The Scientific Registry of Transplant Recipients (SRTR) serves the national community of organ donation and transplantation professionals by providing advanced statistical and epidemiological analyses related to solid organ allocation and transplantation. On January 25, 2022, Dr. Jon Snyder, director of transplant epidemiology at the Hennepin Healthcare Research Institute, presented on behalf of SRTR the Conversation Series program entitled Knowing is Half the Battle: Using SRTR Data to Monitor Transplant Program Performance . Several hundred professionals attended the presentation and shared the value of understanding the usage of various performance metrics in their daily work. Survey feedback from the session revealed the importance of Dr. Snyder’s accessible style and clarity with numbers. Based on this strong community feedback, The Alliance will collaborate with SRTR to host this metrics-focused program annually for the community of practice. Each January community partners can look forward to a presentation, followed by breakout sessions to explore the SRTR databases to use for their own organizations. Discussion will be facilitated to ensure the program is as effective as possible to immediately utilize the information in the local organizations. The 2023 Conversation Series program is set for Tuesday, January 24, 2023 at 2pm ET. The Alliance and SRTR Partner to Host Annual Metrics Learning Program in 2023 COUNT ON US.

Doctors Magee (center) and Sung (left) with members of the University of Michigan Kidney Team. The UM Transplant Center has been a significant contributor of volunteer expertise to The Alliance for many years.

In July 2019, an Executive Order was signed to launch the Advancing American Kidney Health (AAKH) initiative to transform the way we prevent and treat kidney disease. To accomplish the goals of the AAKH initiative, the Centers for Medicare & Medicaid Services (CMS) created the End Stage Renal Disease (ESRD) Treatment Choices (ETC) payment model to encourage preventative kidney care, home dialysis, and kidney transplants. To support the ETC model’s focus on increased kidney transplants, CMS, in collaboration with the Health Resources & Services Administration (HRSA), has established the ESRD Treatment Choices Learning Collaborative (ETCLC). The ETCLC will bring transplant centers, Organ Procurement Organizations (OPOs), donor hospitals, patients, and families together to improve quality and generate cost savings to CMS using systematic quality and process improvement methods. This work is supported by a National Faculty and Leadership Coordinating Council made up of more than 20 organizations in the field, including The Alliance. Quality and Process Improvement for Americans with ESRD

2022 ANNUAL REPORT

2022 NATIONAL CRITICAL ISSUES FORUM Optimizing Performance in AN AGE OF DISRUPTION

The 2022 National Critical Issues Forum, which was held in-person in Orlando, Florida, convened current and emerging leaders to explore the regulatory shifts, economic challenges, staffing pressures, and our need to incorporate novel technical innovations into organ donation and transplantation practices. A principal objective of this forum was to provide participants with the necessary information and connections to turn challenges into opportunities to improve performance. Throughout the meeting, several “TAD” (Transplantation and Donation) Talks featured national experts from across the continuum who shared critical ideas

worth sharing in our ever-changing healthcare environment. A live artist also captured insights from presentations to

Special Thanks to our Planning Committee

RICHARD K. GILROY, MD (CHAIR) Intermountain Medical Center, UT RICHARD HASZ Gift of Life Donor Program NANCY FOSTER American Hospital Association, D.C. JON SNYDER, PHD, MS Hennepin Healthcare Research Institute JOHN MAGEE, MD University of Michigan JANICE WHALEY, MPH, CPTC, CTBS Donor Network West

graphical depict many of the take-aways. On the heels of announcing a milestone 1 million transplants in the US, the community celebrated its successes and acknowledged the important work ahead. Throughout the meeting, new ideas were posed and trust was emphasized to manage a path forward, together.

Scan the QR code for more information about the presentations.

from the 2022 National Critical Issues Forum Scenes

STRATEGIC PILLAR I: COMMUNITY COLLABORATION

2022 ANNUAL REPORT

STRATEGIC PILLAR I: COMMUNITY COLLABORATION

2022 ANNUAL REPORT

The NASEM Report

The Alliance Curates Resources to Aid in Understanding and Responding to NASEM Report Recommendations

In 2022, the National Academies of Sciences, Engineering, and Medicine (NASEM) made several recommendations to address racial and other disparities, reduce the nonuse of donated organs, and reduce or eliminate variations in the performance of transplant centers and OPOs. The report is entitled, “Realizing the Promise of Equity in the Organ Transplantation System.” To be responsive to the recommendations, The Alliance has curated a list of resources to help the community understand the recommendations and begin implementing changes. Resources include: • Background information, including links to the original report • Programs from The Alliance Conversation Series and Advancement Series, including a variety of on-demand webinar recordings and upcoming live learning programs. • Other Resources from The Alliance Community Resource Toolbox, including journal articles, presentations and more. • Two specific presentations directly address the report and its recommendations for a path forward: • “National Academies Study on Organ Transplantation: Realizing the Promise of Equity in the Organ Transplantation System.” Overview Presented by Dr. Kenneth Kizer and Dennis Wagner; Brought to you by The Alliance, in partnership with NATCO and the American Society of Transplantation (AST). • “Ahead of the Bus: The NASEM Report, Our Road Map for the Future.” Presenters: Dr. Yolanda Becker, Kevin Cmunt, Jennifer Milton; Sponsored by CareDx. The list of these resources may be found on The Alliance website under “Resources.”

The NASEM Report contains a critical set of recommendations that will help guide the community of practice for the next decade.” KEVIN MYER LifeGift, Immediate Past Chair of The Alliance Board of Directors

2022 ANNUAL REPORT

The Alliance Conversation Series explores critical topics that require a significant level of community discourse and exploration. Offered at no cost, national experts host an interactive discussion to enhance understanding of new, evolving or controversial concepts. THE ALLIANCE CONVERSATION SERIES

The Alliance Advancement Series regularly delivers insights from national experts, as they explore new or emerging topics and techniques that can be leveraged to increase the number of transplantable organs. All programs are available live and on-demand for high- convenience learning at your own pace. THE ALLIANCE ADVANCEMENT SERIES

The Alliance welcomes additional recommendations for relevant material to post for the community of practice. Please send ideas to info@organdonationalliance.org.

The complete list of these resources may be found on The Alliance website under “Resources,” or by scanning this QR code with your smart phone photo app.

2022 ANNUAL REPORT

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