NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

References

1. Ó Coimín D, Rohde D, Foley C, O’Carroll T, Murphy R. Dying, death and bereavement: developing a national survey of bereaved relatives. BMC Palliative Care. 2023;22(1):14. 2. National Care Experience Programme. International Review of National End of Life Surveys. Dublin: National Care Experience Programme; 2021. 3. Health Information and Quality Authority. National Standards for Residential Care Settings for Older People in Ireland. Dublin: Health Information and Quality Authority; 2016. 4. Health Information and Quality Authority. National Standards for Safer Better Healthcare. Dublin: Health Information and Quality Authority; 2012. 5. Hunt KJ, Richardson A, Darlington AE, Addington-Hall JM. Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England. BMJ supportive & palliative care. 2019;9(1):e5. 6. Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, et al. Measuring Experience With End-of-Life Care: A Systematic Literature Review. Journal of pain and symptom management. 2015;49(5):904-15.e1-3. 7. NHS England. Consultation Report: Feedback on the Quality of End of Life Care. NHS England: https://www.england.nhs.uk/wp-content/uploads/2016/04/voices- consultation-summary.pd f; 2016. 8. Miyashita M, Aoyama M, Nakahata M, Yamada Y, Abe M, Yanagihara K, et al. Development the Care Evaluation Scale Version 2.0: a modiȴed version of a measure for bereaved family members to evaluate the structure and process of palliative care for cancer patient. BMC palliative care. 2017;16(1):8. 9. Oɝce of the Ombudsman. A Good Death: Progress Report. Developments in End of Life Care in Irish Hospitals. Oɝce of the Ombudsman: https://www.ombudsman. ie/publications/reports/a-good-death-progress-rep/GoodDeathProgressWeb.pdf ; 2018. 10. Ó Coimín D, Korn B, Prizeman G, Donnelly S, Hynes G, Curran M, Codd M. Survey of Bereaved Relatives: VOICES MaJam. Dublin: Mater Misericordiae University Hospital and St. James’s Hospital; 2017. 11. Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology. 2013;13(1):117.

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