NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Chapter 4: Participants’ experiences of the care provided to a family member or friend at the end of life

60

Experiences of care in the last two days of life

61 62 62 64 68 73 78 83 84

Location of care in the last two days

Place of death

Experiences of care at home in the last two days of life Experiences of care in a nursing home in the last two days of life Experiences of care in hospital in the last two days of life Experiences of care in a hospice in the last two days of life

Overall experiences of care at the end of life Overall experiences of care at the end of life

Chapter 5: Participants’ experiences of the care and support provided to them in the last days of their relative or friend’s life

88 91 91

Sources of support

Overall experiences of care and support

Chapter 6: Coordination of care across settings

95

Examples of comments relating to continuity, availability and responsiveness of care

99

Conclusion

101

What happens next?

102

References

103

Appendices

104 104 106 110 112 116 118 120

Appendix 1: Membership of the National End of Life Survey governance groups Appendix 2 Who took part in the National End of Life Survey 2023?

Appendix 3: A technical note on analyses and interpretation Areas of good care and areas needing improvement

Areas of good care experience Areas needing improvement

Appendix 4: The National End of Life Survey 2023

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