NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Appendix 3: A technical note on analyses and interpretation Preliminary note Please note that values in ȴgures do not always add up to 100% exactly. This is due to rounding.

Scoring methodology

The scores for the stages of care were calculated by grouping survey questions into eight stages of care: care at home, care in a nursing home, care in an acute hospital, care in a hospice, care in last three months, care in last two days, care at end of life and experience of care and support. Scores are presented for individual questions making up a stage of care. The responses to all questions in each stage were also summarised to form overall scores ranging from 0-10. (14) The National End of Life Survey scoring methodology is based on the methodology used in the National Inpatient Experience Survey, which was in turn based on the approach used by the Care Quality Commission on behalf of the National Health Service (NHS) in England. It should be noted that only evaluative questions could be scored, that is questions that assessed an actual experience of care. Routing or demographic questions were not scored. More ‘positive’ answers were assigned higher scores than more ‘negative’ ones. In the example, ‘No’ was given a score of 0, ‘Yes, to some extent’ was given a score of 5 and ‘Yes, deȴnitely’ was given a score of 10. The last response option, ‘They did not see the public health nurse’ was categorised as ‘missing’. It was not scored as it cannot be evaluated in terms of best practice. The table below shows how scores were calculated for a speciȴc question. In this example, the scores of ȴve respondents are presented. The score for Q7 is calculated by adding the scores in the right-hand column (10+10+5+0+5), before dividing them by the number of people who responded to this question (30/5=6). Thus, the average score for Q7 is 6 out of 10.

Example of a scored question in the 2023 survey

Table E.

Q7. Overall, did you feel they were treated with respect and dignity by the public health nurse? Respondent Score

1

10

2 3

10

5

4

0

5

5

Sum of scores

30

110

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