NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Q12. Did someone from a hospice, community palliative care team, or any other specialist palliative care service visit them at home in the last three months of their life? 1  Yes 2  No, this was not needed 3  No, this was not o΍ered 4  Don’t know Q13. While at home, did healthcare sta΍ help and support them with accessing additional equipment for their home, or making minor adaptations to their home? 1  Yes, deȴnitely 2  Yes, to some extent 3  No

Q17. While at home, if they needed help from healthcare sta΍, did they get it as soon as they needed it? 1  Yes, always 2  Yes, sometimes 3  No

They did not need any help from healthcare sta΍

4 

Q18. Overall, while they were at home, did healthcare sta΍ answer any questions you had in a way that you could understand? 1  Yes, always 2  Yes, sometimes 3  No 4  I didn’t have any questions Q19. Overall, while they were at home, did you have conȴdence and trust in the healthcare sta΍ treating them? 1  Yes, always 2  Yes, sometimes 3  No Q20. While at home, did the healthcare sta΍ give you enough help and support to care for them? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  I did not need help with this 5  Don’t know Q21. Overall, how would you rate the care your relative or friend got at home from healthcare sta΍ in the last three months of their life? (Please circle a number) They received very poor care They received very good care 0 1 2 3 4 5 6 7 8 9 10

They did not need additional equipment or adaptations to the home

4 

Don’t know

5 

Q14. While at home, if they experienced pain, did healthcare sta΍ do everything they could to relieve it? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  They did not have any pain

Q15. While at home, if they experienced

symptoms other than pain (such as nausea, constipation, breathing diɝculties or restlessness), did healthcare sta΍ do everything they could to relieve them? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  They did not need help with this Q16. While at home, did healthcare sta΍ help and support them with their emotional needs (e.g. feeling worried, feeling anxious, feeling low, etc.)? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  They did not need help with this 5  Don’t know

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