NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Q78.

Q73.

During the last two days of their life, was there enough help available to meet their personal care needs (such as washing, dressing and toileting)? 1  Yes, deȴnitely 2  Yes, to some extent 3  No

During the last two days of their life, do you think your relative or friend was involved as much as they wanted to be in decisions about their care and treatment? 1  Yes, deȴnitely 2  Yes, to some extent 3  No

They did not need help with personal care needs

They were not able to be involved in decisions at this time

4 

4 

Don’t know

5 

Q74.

During the last two days of their life, was there enough help with nursing care, such as giving medicine and helping them ȴnd a comfortable position in bed? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  Don’t know During the last two days of their life, did a member of the hospice, palliative care team, or any other specialist palliative care service, visit them? 1  Yes 2  No 3  Don’t know During the last two days of their life, did you feel that there was good coordination between the healthcare sta΍? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  Don’t know During the last two days of their life, was there adequate support to meet their needs outside of normal working hours (after 5pm, at night and at weekends)? 1  Yes, always 2  Yes, sometimes 3  No 4  Don’t know

Q79.

During the last two days of their life, did healthcare sta΍ discuss with you the level of treatment and care and its appropriateness (in terms of medical interventions and their illness) that your relative or friend would receive? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  Does not apply to our situation During the last two days of their life, did you have conȴdence and trust in the nurses who cared for them? 1  Yes, always 2  Yes, sometimes 3  No 4  Does not apply to our situation During the last two days of their life, did you have conȴdence and trust in the doctors who cared for them? 1  Yes, always 2  Yes, sometimes 3  No 4  Does not apply to our situation During the last two days of their life, did healthcare sta΍ treat them with kindness and compassion? 1  Yes, always 2  Yes, sometimes 3  No 4  Does not apply to our situation Overall, during the last two days of life, did you feel that they were treated with respect and dignity by healthcare sta΍? 1  Yes, always 2  Yes, sometimes 3  No

Q75.

Q80.

Q76.

Q81.

Q77.

Q82.

Q83.

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