NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Q89.

If they died in a healthcare setting (e.g. a hospital, hospice or nursing home), were they in a single room? 1  Yes 2  No

3.3

Your experience of care and support

The following questions are about your experience of the care and support provided to you by healthcare sta΍ in the last days of your relative or friend’s life, and after they died.

They did not die in a healthcare setting

3 

Don’t know

4 

Q90.

On balance, do you think that they died in the right place? 1  Yes 2  No 3  Not sure Overall, how would you rate the care your relative or friend received at the end of their life? (Please circle a number)

Q92. Looking back over the last days of their life, were you given enough emotional help and support by healthcare sta΍? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  I did not need help with this 5  Not applicable to my situation Q93. Looking back over the last days of their life, were you given enough help and support by healthcare sta΍ to talk to children or young adults about your relative or friend’s illness? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  I did not need help with this 5  Not applicable to my situation Q94. Looking back over the last days of their life, were you involved as much as you wanted to be in decisions about their care and treatment? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  Not applicable to my situation healthcare sta΍ explain their condition and care in a way that you could understand? 1  Yes, deȴnitely 2  Yes, to some extent 3  No 4  Not applicable to my situation Q95. During the last days of their life, did

Q91.

They received very poor care

They received very good care

2 3

0 1

4 5 6 7 8 9 10

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