NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Analysis of bereaved people’s comments Three free-text questions asked participants to describe their experiences in their own words:

 Q101 . Overall what was good about the care your relative or friend received?

 Q102. Was there anything that could have been improved?

 Q103. Do you have any other comments or suggestions about the care your relative or friend received? In total, 9,520 comments were made in response to these free-text questions. A framework approach (11) was used to analyse the comments received in response to the open-ended questions. This approach involves multiple analysts reviewing survey comments, identifying a framework of key concepts and themes, then applying the framework across all survey comments. An analytical framework consisting of 49 codes was developed (Table 2.1). These codes were then mapped to 18 themes (Table 2.2). 14 The framework helped to organise and systematically reduce the thousands of comments into manageable segments of information. The framework approach is suited to analysing large volumes of qualitative information and has previously been used to analyse comments made in the National Maternity Bereavement Experience Survey and the National Inpatient Experience Survey.

14 748 short comments (‘yes’, ‘no’, ‘none’, ‘NA’, ‘no comment’) were received across the three open- ended questions. These are included in the ‘general and other comment’ theme.

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