Findings of the National End of Life Survey | 2023
List of comment codes
Table 2.1
Communication – sta with sta Communication – sta with deceased Communication – sta with respondent
Feedback and complaints process
Admin sta General sta
GPs
HCAs (Health Care Assistant)
Public health nurse (PHN), District/ community nurse
Ambulance service
Community health
Doctors
Homecare and home help
Involvement in patient decisions
Diagnosis and tests
Nurses
Staɝng – access to speciȴc palliative care expertise and training
Food and nutrition
Caring for patients with speciȴc specialist needs
Coordination of care within settings
Continuity of care across care settings
Pain management
Staɝng levels, availability and responsiveness
Symptom and medication management Medical needs and equipment
Urgent or out of hours support
Psychosocial, emotional, spiritual and cultural support for deceased
Access to and availability of local care
Experience of care (Home/Community)
General quality of care
Model of care (public/private)/Private Insurance issues
Experience of care (Hospice)
ED/A&E experiences
Impact of COVID
Dignity, respect, privacy, compassion, kindness
Experience of care (Hospital)
Experience of care (Nursing Home) Facilities – end of life (hospital/nursing home/hospice). Facilities – general (hospital/nursing home/ hospice)
Resources for respondent
Personal belongings
Psychosocial, emotional, spiritual and cultural support for family
Ward environment
Financial and legal impacts of caring
Visiting
Timing of end-of-life care General comments that are negative, neutral Care at time of death General appreciation, gratitude, a non-speciȴc positive comment
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