Findings of the National End of Life Survey | 2023
For Q102, most of the comments related to the ‘Continuity, availability and responsiveness of care’, ‘Communication’ and ‘General and other comment’ 16 themes.
Continuity, availability and responsiveness of care
“At times, he maybe struggled with his care, because he didn’t have medical care at hand. We had a carer in the house during the day, but regular scheduled medical check up by a nurse or doctor would have helped - maybe every two or three days.”
“Very very poor support after-hours when a medical emergency happened after hours. Both attending resigtrar and nursing sta had poor understanding of what to do, further increasing the anxiety of my Dad and family.”
Communication
“I wish I could have been given more information about the end of life pain relief. My partner was sedated while I wasn’t there so I didn’t really get a chance to say goodbye while he was conscious. I don’t think we got enough information towards the end.”
“I felt communication between the doctors, nurses and myself was minimal. My brother had asked that they speak with me and keep me informed but I always had to go and look or request time to discuss. There does not seem to be anyone to liaise with me as my brother was not taking much on board.”
General and other comment
“Hospital bed which has been provided by the health board was not collected for almost 3 weeks after the death of my spouse. This caused me upset as my spouse had to stay in hospital for an extra day because bed was not available and then I had bed in my house for 3 weeks which someone else could have used.”
“More clarity on using health insurance or not - and what the dierence really means in the particular circumstances you ȴnd yourself in, it’s always vague and approached at a very vulnerable time.”
16 Comments in this theme included neutral or non-speciȴc negative comments.
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