Findings of the National End of Life Survey | 2023
Care at home
“The public health nurse couldn’t have been kinder, more supportive, professional and knowledgeable. He called to the house almost daily and did everything in his power to respect my mothers wishes and care for her with such compassion.”
“When he came home for 6 weeks, his care was distributed to all dierent teams in the community. This was very hard on my husband and I. I spent all my time trying to contact them.”
“Doctors’ home visits should be facilitated especially for elderly with poor mobility and no transport in rural areas. I attempted to get 2 local doctors to make a home visit in the weeks before my mother went to hospital. They both refused.”
“We got good support with having equipment in place at home - hospital bed, air mattress, commode, special pressure cushion etc. The Palliative Care team had pre-ordered a lot of meds that might be needed - this was reassuring, we had them stored at home and knew there would be no panic if they were needed when chemists closed at night or weekends etc.”
“My mother wanted to die at home. Hospice would have probably found it easier if she would have been admitted but they provided us with all the support we needed so that she could die at home.”
“Support from the Palliative Care team in the ȴnal days was limited. They were very nice people with loads of experience and wisdom but they seemed to be very stretched. We had our ȴnal visit 2.5-3 days before he died. After that we just got telephone support.”
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