NELS-National-Report-2023

Findings of the National End of Life Survey | 2023

Figure 3.24 shows the overall experiences of care in a hospice by the illnesses of the person who died. Participants who reported that their friend or relative had inȵuenza or pneumonia in the last hours and days of their life were most likely to report a ‘fair to poor’ experience (three of 20 people or 15.0%). Participants whose relative or friend had a neurological condition were the next group most likely to report a ‘fair to poor’ experience (three of 35 people or 8.6%). All participants who said their relative or friend had COVID-19 reported a ‘very good’ experience of care in a hospice (11 of 11 people or 100%). All participants who did not know what illness their relative or friend had in the last hours and days of life also reported a ‘very good’ experience of care in a hospice (two of two people or 100%). Almost all participants whose relative or friend had end stage renal disease reported a ‘very good’ experience (24 of 25 people or 96.0%).

Figure 3.24 Overall experience of care received in hospices by illness

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

6.6%

1.9%

91.6%

Cancer

100.0%

Covid-19

3.2%

3.2%

93.5%

Dementia

7.5%

2.5%

90.0%

Heart condition

Inȵuenza or pneumonia

10.0%

15.0%

75.0%

Lung condition

8.1%

8.1%

83.9%

Neurological condition

2.9%

8.6%

88.6%

End stage renal disease

4.0%

96.0%

100.0%

Don't know

Something else

13.6%

2.3%

84.1%

Fair to poor (0 to 6)

Good (7 to 8)

Very good (9 to 10)

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